At the Intellus Fall Institute awards ceremony on September 12, RPV President Wes Michael received an Intellus Impact Award for Advocacy, recognizing his contributions in empowering patients and family caregivers to … READ MORE
RPV and the Patient Voice on The Pickle Jar Podcast
“The Pickle Jar Podcast” host Jill Battle lives with a rare autoimmune disease. Her mission is to advocate, educate and empower people living with Addison’s disease and other invisible illnesses to … READ MORE
RPV’s Pam Cusick on The Special Needs Voice Podcast
Oak Wealth Advisors’ “The Special Needs Voice” podcast features interviews with top leaders in the special needs community. Host Tony Schneider hopes that listeners will learn something new and gain information for … READ MORE
Happy Labor Day from RPV!
Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
Rare Revolution and Pam Cusick on Bringing Patients and Researchers Together
RARE Revolution Magazine Engagement Associate Becky Pender recently caught up with Rare Patient Voice Senior Vice President Pam Cusick to learn how RPV is turning the tide for people living … READ MORE
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