We are happy to share the results of a study we recently conducted across our patient/caregiver panels. We asked patients and caregivers their opinions about patient advocacy groups. One of … READ MORE

  “You got any jobs at Rare Patient Voice?” Kirk called out of the blue about a year ago. “Well, no, but let’s talk.” Kirk is an MS patient on … READ MORE

Rare Patient Voice conducted a study among n=3455 patients and caregivers to gain a better understanding of their experience with Patient Advocacy groups and their thoughts about collaboration between Patient … READ MORE

In the past few weeks we have been on the road attending conferences, walks and 5K runs in support of our patients!  ‘Tis the season!  This weekend we attended a … READ MORE

Remember the movie Pay It Forward with Kevin Spacey? It’s been longer than I thought, it came out in 2000. The idea was simple – do something good for someone, … READ MORE