Ginger Segala earned a BA from the University of Maryland, College Park and her Masters in Social Work from the University of Maryland, Baltimore. As a member of the Rare … READ MORE

“Spoon Full of Strength” is a new podcast discussing all things chronic, for patients and their caregivers. In this episode, RPV Senior Vice President Pam Cusick speaks with hosts Rachel and … READ MORE

Wes Michael recently talked to Run Radio Podcast host Trina Wilcox about patients and caregivers sharing their voices with researchers and companies to develop products, devices, and treatments to improve … READ MORE

Connecting with the right respondents is one of the first steps to any successful research study. With our community of patients and family caregivers across nine countries, all signed up … READ MORE

Recruiting for an international study? The RPV community includes rare and non-rare disease patients and family caregivers around the world, all of whom are eager to have their voices heard! For … READ MORE