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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Meet Our Team: Madeline Nylen, Scheduler

July 25, 2024 Laura Mullen

Madeline joined the Rare Patient Voice field operations team in 2023 as a scheduler. She earned a BS in Accounting from the University of North Alabama and currently resides in … READ MORE

Filed Under: Business

RPV’s Wes Michael on American Marketing Association Podcast

July 24, 2024 Laura Mullen

In a world where marketing is everything, and everything is marketing, the AMA Marketing/And podcast explores the idea that everything can be a marketing conversation. In this episode, Getting It Right and … READ MORE

Filed Under: Business, Interviews

RPV & Avant Health Release Results from New Study on the Diagnostic Journey

July 15, 2024 Laura Mullen

Avant Health and Rare Patient Voice Release Results from an International Survey Revealing Rare Disease Patient and Caregiver Perspectives on the Diagnostic Journey Two-thirds of rare disease patients and caregivers … READ MORE

Filed Under: Business

Happy Fourth of July from RPV!

July 3, 2024 Laura Mullen

Wishing everyone a safe and happy July 4th, from all of us (including Rarity, decked out here as Uncle Sam) at Rare Patient Voice!

Filed Under: Business, Patient

RPV Is Accredited by the Better Business Bureau

June 26, 2024 Laura Mullen

Rare Patient Voice is proud to once again announce our achievement of Accreditation with the Better Business Bureau®. BBB is a standards-based, nonprofit organization with a local Board of Directors. … READ MORE

Filed Under: Business

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Rare Patient Voice

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