“I am married and have two kids, a daughter that is nine and a son that is six. In January of 2018 I was diagnosed with Neuromylitis Optica. At the time of being diagnosed I was paralyzed on my left leg and started to have neuropathy pain throughout my entire body. After some rehab I have regained my movement and can walk again. I still deal with nerve pain daily!
Rare Patient Voice has introduced me to so many others that have rare diseases so that I don’t feel alone with such a rare disease.”