“I am married and have two kids! A daughter that is 9 and a son that is 6. In January of 2018 I was diagnosed with Neuromylitis Optica! At the time of being diagnosed I was paralyzed on my left leg and started to have neuropathy pain throughout my entire body! After some rehab I have regained my movement and can walk again. I still deal with nerve pain daily!
Rare Patient Voice has introduced me to so many others that have rare diseases so that I don’t feel alone with such a rare disease.”
