Yesterday afternoon, something we’ve known all along at Rare Patient Voice was confirmed in a major way. Our Senior Vice President, Pam Cusick, was named one of MM+M’s Women of … READ MORE
Rare Patient Voice Chosen for Inclusion in the Valuable Directory
The Valuable 500 Launch World’s First Global Directory of Disability Inclusion Specialists TOWSON, MD, March 8, 2022 – Today, on International Women’s Day, the Valuable 500, the largest network of … READ MORE
RPV’s Pam Cusick on Supporting Ourselves and Others
Taking time to think about who we are and where we are going can easily fall by the wayside in our busy lives. But practicing some introspection, goal-setting, and self-care … READ MORE
The Power of the Patient Voice: Talking DTC Webinar Recording Available Now
People living with a disease or caring for a loved one who does really do become front line experts. There is significant value in patients and caregivers sharing their experiences … READ MORE
Germany’s +3 Magazine Interviews Pam Cusick on the Patient Voice
Rare disease affects over 300 million people around the world, making it a truly global health priority. Rare Patient Voice connects patients and caregivers in Germany, Spain, Italy, France, and … READ MORE
