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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Wes Michael Talks Recruiting Nightmares with QRCA

January 25, 2022 Laura Mullen

This past November, Wes Michael presented virtually with QRCA on a topic that is (unfortunately) near and dear to many of our hearts: recruiting nightmares. Over the years we’ve learned … READ MORE

Filed Under: Business Tagged With: authenticity, focus group, market research, moderator, MRX, patient recruitment services, QRCA

RPV’s Pam Cusick on Supporting Ourselves and Others

November 15, 2021 Laura Mullen

Taking time to think about who we are and where we are going can easily fall by the wayside in our busy lives. But practicing some introspection, goal-setting, and self-care … READ MORE

Filed Under: Business Tagged With: Enneagram, market research, Pam Cusick, WIRexec Leadership Summit, Women in Research

The Basics of Rare Patient Voice for Clients

October 29, 2021 Laura Mullen

When we’re caught up in our projects and busy professional lives, we can forget that the basics of our work may not be crystal clear to even longtime clients. Rare … READ MORE

Filed Under: Business Tagged With: Caregivers, market research, market research studies, patient recruitment, patients, Rare Patient Voice

CheckRare Interviews Wes Michael on RPV’s Recent Milestone

August 20, 2021 Laura Mullen

The input of patients and caregivers is essential to the development of new treatments, services, and products that can improve their lives. At RPV, we are proud to help make … READ MORE

Filed Under: Business, Patient Tagged With: CheckRare, market research, patient voice, patients, Rare Patient Voice, Wes Michael

Rare Patient Voice Ranks on the 2021 Inc. 5000, With Three-Year Revenue Growth of 111 Percent!

August 17, 2021 Laura Mullen

Inc. Magazine Reveals Annual List of America’s Fastest-Growing Private Companies—the Inc. 5000  NEW YORK, August 17, 2021 – Inc. magazine today revealed that Rare Patient Voice LLC is No. 3265 … READ MORE

Filed Under: Business, Patient, Press Releases Tagged With: fastest-growing private companies, honoree, Inc., Inc. 5000, market research, Rare Patient Voice, Wes Michael

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Latest Blog Posts

  • Happy Thanksgiving from RPV!
  • The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
  • The Co-Design Revolution: Patients and the Future of Clinical Trials
  • Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook
  • Pam Cusick Talks Caregiving on All Home Care Matters Podcast

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What’s New at Rare Patient Voice?

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