In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
Elevating Patient Voices for Rare Disease Day and Every Day
Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
RPV Has Rewarded Patients and Caregivers $15 Million+ for Participation in Research
Now entering its 12th year, RPV recruits patients and family caregivers for market research studies, clinical trials, and more. Towson, MD, 1.8.2025 – First launched in 2013, Rare Patient Voice … READ MORE
Rare Patient Voice Surpasses 10,000 Project Mark
Towson, MD, 9.16.2024 – Since 2013, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their opinions and insights heard by decision makers through participation in research. … READ MORE
RPV Celebrates the Rare Community, on Rare Disease Day and Everyday
Towson, MD, 2.29.2024 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in research studies. On this … READ MORE
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