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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Where do we find our clients?

May 5, 2019 Wes Michael

We are proud to have over 300 clients and we keep gaining new ones. Where do we find them? Fortunately, I have been in the healthcare market research field for … READ MORE

Filed Under: Business

What feedback do you get from clients?

April 7, 2019 Wes Michael

Feedback from clients is so useful to us! How else can we learn what we are doing right and where we need to make improvements? One way we get feedback … READ MORE

Filed Under: Business

Are Rare Patient Voice panelists spread across the United States?

April 7, 2019 Wes Michael

We get several variations of this question. Since many people know we recruit patients at patient events like walks and conferences, they wonder if we have patients from all over … READ MORE

Filed Under: Business

My Least Favorite Topic – No-Shows

March 23, 2019 Wes Michael

As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour (typically). What do I least like to hear about – No-shows! … READ MORE

Filed Under: Business

Does Rare Patient Voice have patients with other diseases or conditions?

March 16, 2019 Wes Michael

Many of you probably know that we list the panels and counts on the website. You can go to https://rarepatientvoice.com/for-researchers/patient-panels. But what if you are looking for a patient group … READ MORE

Filed Under: Business

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Recent Posts

  • Wes Michael Discusses the Patient Voice on Chronic Truth Podcast
  • Happy Thanksgiving from RPV!
  • The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
  • The Co-Design Revolution: Patients and the Future of Clinical Trials
  • Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook

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Rare Patient Voice

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Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

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Rare Patient Voice, LLC, Market Research, Towson, MD
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