We are so grateful for our community of patients and family caregivers, our clients, and our staff. Thank you from Rarity, our hungry zebra mascot, and all of us at … READ MORE
The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
The Co-Design Revolution: Patients and the Future of Clinical Trials
The landscape of clinical trials, particularly within the area of rare diseases, is undergoing a necessary and profound evolution. No longer is the patient merely a passive subject; they are … READ MORE
Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook
Fraud in research is real and growing, but it doesn’t have to be overwhelming. With vigilance, thoughtful sourcing, and transparency, preserving the integrity of our insights can be a reality. … READ MORE
Pam Cusick Talks Caregiving on All Home Care Matters Podcast
All Home Care Matters is a podcast and YouTube show dedicated to helping provide resources to families as they face long-term care questions and issues for themselves and loved … READ MORE
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