Recruiting for an international study? The RPV community includes rare and non-rare disease patients and family caregivers around the world, all of whom are eager to have their voices heard! For … READ MORE
Meet Our Team: Madeline Nylen, Scheduler
Madeline joined the Rare Patient Voice field operations team in 2023 as a scheduler. She earned a BS in Accounting from the University of North Alabama and currently resides in … READ MORE
RPV’s Wes Michael on American Marketing Association Podcast
In a world where marketing is everything, and everything is marketing, the AMA Marketing/And podcast explores the idea that everything can be a marketing conversation. In this episode, Getting It Right and … READ MORE
RPV & Avant Health Release Results from New Study on the Diagnostic Journey
Avant Health and Rare Patient Voice Release Results from an International Survey Revealing Rare Disease Patient and Caregiver Perspectives on the Diagnostic Journey Two-thirds of rare disease patients and caregivers … READ MORE
Happy Fourth of July from RPV!
Wishing everyone a safe and happy July 4th, from all of us (including Rarity, decked out here as Uncle Sam) at Rare Patient Voice!
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