How quickly can we recruit patients for your study? Here, RPV President Wes Michael explains how we are able to provide gold star service that is like “a supersonic jet … READ MORE
Wes Michael Discusses the Patient Voice on Chronic Truth Podcast
The Chronic Truth podcast provides listeners with advice on how to navigate through uncertain diagnoses, finding your light during the dark times, and having a better outlook on life. In … READ MORE
Happy Thanksgiving from RPV!
We are so grateful for our community of patients and family caregivers, our clients, and our staff. Thank you from Rarity, our hungry zebra mascot, and all of us at … READ MORE
The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
The Co-Design Revolution: Patients and the Future of Clinical Trials
The landscape of clinical trials, particularly within the area of rare diseases, is undergoing a necessary and profound evolution. No longer is the patient merely a passive subject; they are … READ MORE
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