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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research

October 6, 2025 Laura Mullen

Clinical research is key to medical progress, providing the data necessary to develop new treatments, improve outcomes, and offer hope to patients. Nowhere is this hope more urgently needed than … READ MORE

Filed Under: Business

Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast

September 18, 2025 Laura Mullen

The Pickle Jar Podcast connects people with Adrenal Deficiency around the world. Host Jill Battle was diagnosed with Addison’s disease in 2011. In the most recent episode, Rare Patient Voice … READ MORE

Filed Under: Business

Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast

August 21, 2025 Laura Mullen

When a rare disease strikes, we might think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. … READ MORE

Filed Under: Business, Interviews

Meet Our Team: Patrick Kobrick, Business Development Associate

August 20, 2025 Laura Mullen

Patrick Kobrick joined Rare Patient Voice in 2020 and works for the company as a Business Development Associate. He is currently pursuing a BS in Astrophysics. Patrick works to ensure … READ MORE

Filed Under: Business

Meet Our Team: Laurie Cotumaccio, Marketing Associate

July 23, 2025 Laura Mullen

Laurie Cotumaccio is an experienced marketing professional, publicist, and events planner. She earned a BS in Radio/TV/Film from Northwestern University in Evanston, IL and landed her first job after college … READ MORE

Filed Under: Business

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Recent Posts

  • Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research
  • Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
  • Sharing My Voice: Kathryn’s Story
  • Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
  • Meet Our Team: Patrick Kobrick, Business Development Associate

Check out our YouTube Channel

https://www.youtube.com/watch?v=cfjkqh5Ykp0

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