Mom Katie and daughter Jolene are our latest Weekly Warriors. Their moving story, initially shared on RPV’s TikTok account, has gone viral, with over 30k views on TikTok and Instagram … READ MORE
RPV’s Pam Cusick Interviewed on the “Desperate for a Diagnosis” Podcast
In May, RPV Senior Vice President Pam Cusick was interviewed on market research veteran Laura Nozicka’s new podcast, “Desperate for a Diagnosis.” The conversation focused on the power of the … READ MORE
Weekly Warrior: Meet Keyla
“Hi, I’m Keyla, I’m 38 years old and I have Crohn’s Disease, and I am a care partner to a 13-year-old with UC. I also have Thoracic Outlet Syndrome, Endometriosis, … READ MORE
Weekly Warrior: Meet Brenda
“My name is Brenda Fregger, I was in my mid 30’s when the first symptoms of a rare incurable disease emerged; it took six years, five doctors, nine orthopedic surgeries, … READ MORE
Meet Our Team: Christina Cooper, Project Scheduler
Christina Cooper began working for Rare Patient Voice as a Project Scheduler in 2022. She joined the RPV team because she is passionate about helping people and making a … READ MORE
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