For the Third Time, Rare Patient Voice Ranks on the Inc. 5000, Coming in at No. 4110 This Year Inc. Magazine Reveals Annual List of America’s Fastest-Growing Private Companies NEW … READ MORE
Weekly Warrior: Meet Hattie
Hattie, a 22 year-old living with epilepsy, is our latest Weekly Warrior. After reaching a low point during the COVID-19 lockdown, she decided to start raising awareness around epilepsy, mental … READ MORE
10 Facts for 10 Years of RPV: #2 – We Are Non-Rare and Rare!
As our tagline notes, the Rare Patient Voice community includes non-rare as well as rare disease patients and family caregivers. We are now 125k+ strong and span more than 1,500 … READ MORE
Weekly Warrior: Meet Ashley
Our newest Weekly Warrior is Ashley, a loving caregiver to her son who lives with a rare cancer. Together they share their experiences on social media and through their “Michael … READ MORE
10 Facts for 10 Years of RPV: #1 – Many of Our Staffers Come from the Patient Community
Did you know that many of RPV’s staffers have roots in the patient community – either as patients or family caregivers themselves? Hear more from President Wes Michael, in celebration … READ MORE
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