Yesterday was the worst day in my professional life. What happened? Did I lose a client? Have a difficult project? Have an upset employee? No, yesterday I was accused of … READ MORE
Amazing Patients and Caregivers
One of the greatest thing about working at Rare Patient Voice is getting the opportunity to meet so many amazing people. Let me tell you about two. Kathryn Ames (I’ll … READ MORE
What has evolution got to do with disease?
I just finished reading The Story of the Human Body: Evolution, Health and Disease, by Daniel Lieberman, a professor at Harvard. I recommend it to anyone interested in either human … READ MORE
Resolutions for 2014
Happy New Year! With each year we of course set resolutions that are mostly forgotten. But I’ve heard if you tell others, you are more likely to follow through, so … READ MORE
From that gap Rare Patient Voice was born
The first time I went to recruit patients for a market research panel was at the National Hemophilia Foundation annual meeting in Tampa in 1998. What an eye-opener. I had … READ MORE
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