We are proud to announce a new patient panel, Eosinophilic Esophagitis. We have 19 patients and 82 caregivers. Eosinophilic Esophagitis), or EoE, is a chronic immune system disease, only identified … READ MORE

We talk about patients, but caregivers (or “carers” to our British friends) are also important. In some disease categories, such as Hemophilia, Lennox Gastaut Syndrome, and Spinal Muscular Atrophy, where … READ MORE

What is it about faxes that physicians’ offices love so much? Is there a worse way to protect patient privacy than sending test results to a machine where the pages … READ MORE

We’ve recruited 93 cancer patient projects this year across 25 different tumor types since teaming up with WhatNext.com, the official social health site of the American Cancer society. Projects have … READ MORE

Happy New Year! January is a time to recap and look forward. The President delivers the State of the Union Address. (Those of us who grew up watching TV in … READ MORE