Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

Helping patients and caregivers share their voices

In the News

Press Releases

Elevating Patient Voices for Rare Disease Day and Every Day

February 28, 2025

RPV Has Rewarded Patients and Caregivers $15 Million+ for Participation in Research

January 8, 2025

Rare Patient Voice Surpasses 10,000 Project Mark

September 16, 2024

RPV Celebrates 10th Anniversary in 2023!

January 3, 2023

RPV Releases Pharma’s Most Wanted Patients List, October 2022 vs September 2022 Edition

November 15, 2022

Media Mentions

DE&I Discussions and the Disability Community: Making the Connection

February 10, 2022

RPV to participate in “Straight Talk on Clinical Trials,” free webinar hosted by CISCRP, 2.16.2022

January 24, 2022

Bloodstream Podcast Interview Wes Michael on Origins of RPV

October 26, 2021

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET. From Friday, May 9th through September 12th, Rare Patient Voice will be closing on Fridays at 12pm Eastern.

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Please note our summer Friday hours: Starting Friday, May 9th and through September 12th, Rare Patient Voice will be closing on Fridays at 12pm Eastern.

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