The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in short compromises his immune system and his body cannot process fats.
In this episode, Rare Patient Voice President Wes Michael speaks with Jonathan about patient empowerment, there not being a one-size-fits-all approach to advocacy, the importance of sharing your story, and more.
The episode is now live and can be listened to here: https://lnkd.in/gaphW334
