• Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Healthcare Research Recruitment
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies & Papers
  • RPV Store

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Healthcare Research Recruitment
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies & Papers
  • RPV Store

Helping patients and caregivers share their voices

Revolutionizing Patient Recruitment and Market Research

November 8, 2023 Laura Mullen

Collage of nine pics of patients and caregivers in various settings

Revolutionizing Patient Recruitment and Market Research

An in-depth interview with Pam Cusick, Senior Vice President, Rare Patient Voice, by Ron Morris, Digital Ad Xperts

In the ever-evolving landscape of patient recruitment and market research, Rare Patient Voice (RPV) has been at the forefront of innovation. Recently, Ron Morris of Digital Ad Experts sat down with Rare Patient Voice Senior Vice President Pam Cusick for a conversation about the company’s mission and groundbreaking approach, and what sets RPV apart in the world of patient recruitment and market research. 

A Unique Mission

Rare Patient Voice has a singular mission – connecting patients and family caregivers with a myriad of research opportunities, ranging from focus groups, surveys, and interviews to clinical trials. What sets RPV apart from the conventional approach is their personalized touch. The organization actively participates in events around the world, meeting patients face-to-face, and educating them about the importance of their role in research.

Meeting patients in person helps establish a genuine connection, fostering trust and encouraging active participation in research. This, in turn, transforms satisfied patients into advocates who spread the word about Rare Patient Voice within their communities, creating a ripple effect of engagement.

Patient Advocacy Network

Beyond event participation, Rare Patient Voice boasts an internal patient advocacy team that collaborates with patient advocacy organizations and support groups globally. This outreach strategy adds a vitally authentic factor to the RPV patient and caregiver community, and also helps it to continue its growth. Patients referred by these organizations are more likely to be genuinely committed to contributing to research, which, in turn, elevates the quality and reliability of the collected data. 

Setting Themselves Apart

Rare Patient Voice’s unwavering commitment to data quality is another differentiator. RPV actively ensures that recruited patients are genuine, thus combating fraud and delivering clients accurate and trustworthy data. This emphasis on authenticity and data quality is highly coveted in the realms of patient recruitment and market research.

Benefits to Clients

Clients, including advertising agencies, pharmaceutical companies, and research organizations, derive immense benefits from Rare Patient Voice’s recruitment services. They gain access to a high-quality, authentic patient pool through direct patient engagement and RPV’s patient advocacy partners. Furthermore, RPV offers clients a streamlined process. A simple request initiates a proposal based on their unique needs, simplifying patient recruitment and making it more accessible for clients seeking patient insights.

Expanding Internationally

Rare Patient Voice’s mission extends far beyond the United States. Their footprint has expanded to encompass Canada, the UK, France, Germany, Italy, Spain, Australia, and New Zealand. RPV’s international growth strategy involves active participation in events and conferences to reach potential patients and clients. By extending their reach globally, the company aims to amplify the voices of patients, ensuring they are heard by researchers worldwide. 

The Key to Bridging the Gap

The crux of bridging the gap between researchers and patients is the active inclusion of patients throughout the research process. Engaging patients in protocol design for clinical trials, for instance, allows researchers to gain a deeper understanding of patient needs and preferences. Rare Patient Voice’s approach underscores the importance of making the process patient-centric. Engaging patients early, allowing them to have a say in research design, and taking their feedback seriously can lead to higher patient retention and better outcomes in clinical trials.

In essence, it’s all about giving patients a voice in research and development. Their input can lead to more patient-centric healthcare solutions and better outcomes for all.

Rare Patient Voice’s work showcases the power of patient engagement in research. By connecting patients and family caregivers with research opportunities and actively involving them in the process, RPV is helping to ensure the patient voice is included in shaping the future of healthcare. Their dedication to transparency, authenticity, and patient-centered research sets them apart as a beacon in the industry, establishing the gold standard for patient recruitment in patient market research.

Filed Under: Business

Latest Blog Posts

  • Planning for Ongoing Excellence and Gold Standard Service at RPV
  • Happy Thanksgiving from Rare Patient Voice!
  • The Voices of Family Caregivers Need to Be Heard
  • Weekly Warrior: Meet Emily
  • Meet Our Team: Cheryll Davies, Assistant Project Manager

Check Out Our YouTube Channel!

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949


Visit our international site, rarepatientvoice.global


Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • What is the Rare Patient Voice referral program?
  • Are you a researcher?
  • Read our blog for businesses

   Instagram TikTok

     

ESOMAR logo

Rare Patient Voice, LLC, Market Research, Towson, MD

Rare Patient Voice, LLC, Market Research, Towson, MD

©2023. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2023 . All Rights Reserved.

Copyright © 2023 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT