Patient and Family Caregiver Study Opportunities

United States

Achondroplasia: Adolescents (Ages 16-17) and Parents of Children (Ages 0-17) in the United States
Participate in a 5-minute survey for a medical history platform and up to $90 per year for caregivers who complete brief surveys about their child's health

Acromegaly patients United States
90-minute web-assisted phone interview plus a 15-minute pre-read assignment, compensation is $180 for the interview and $30 for the pre-read assignment

Advanced Parkinson's Disease (PD) patients United States
60-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $120

African-American or Hispanic patients age 40+ in Philadelphia, PA or San Diego, CA United States
60-minute or 75-minute in-person interview, compensation is $150 for the 60-minute interview and $175 for the 75 minute interview

Allergy caregivers in Iselin, New Jersey United States
75-minute in-person focus group, compensation is $150

Alpha Thalassemia, Beta Thalassemia patients and caregivers United States
75-minute web-assisted phone interview, compensation is $150

Alpha Thalassemia, Beta Thalassemia patients and caregivers United States
60-minute web-assisted phone interview plus confirmation of diagnosis, compensation is $180 for the interview and $50 for confirmation of diagnosis

Alzheimer's Disease (AD) caregivers of biological patients who have taken the pTau marker test United States
1 day in-person event in Indianapolis, IN, compensation is $125 per hour

Alzheimer's Disease (AD) caregivers (males who care for their spouse) United States
45-minute web-assisted phone interview, compensation is $45

Amyloidosis: ATTR-CM patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Aortic Disease: Aortic Stenosis patients United States
60-minute web-assisted phone interview, compensation is $120

Atopic Dermatitis (Eczema) patients ages 18+ United States
60-minute web-assisted phone interview, compensation is $120

Atopic Dermatitis (Eczema) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Autoimmune Encephalitis (AE) patients and caregivers United States
Patients: 60-minute web-assisted phone interview or 60-minute autoethnography; caregivers: 30-minute web-assisted phone interview; patient/caregiver duo: 30-minute web-assisted phone interview, compensation is $150 for the patient interview or autoethnography, $75 for the caregiver interview, $75/patient and $75/caregiver for the duo interview

Becker Muscular Dystrophy (BMD) patients and caregivers of patients ages 13 or older United States
60-minute web-assisted phone interview, compensation is $120

Bladder Cancer: Muscle-Invasive Bladder Cancer (MIBC) patients United States
60-minute web-assisted phone interview plus confirmation of diagnosis, compensation is $100 for the interview and $80 for confirmation of diagnosis (paid via egift card)

Bladder Cancer patients United States
Year long online community, compensation is gift cards upon completion of sections

Bladder Cancer patients United States
20-minute online survey, compensation is $40

Bladder Cancer patients United States
60-minute web-assisted phone interview, compensation is $120

Bladder Cancer patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Bladder Cancer patients and caregivers United States
30-minute online survey, compensation is $60

Breast Cancer (BC): Metastatic patients United States
60-minute web-assisted phone interview, compensation is $120

Breast Cancer (BC): Metastatic patients (Stage IV) United States
25-minute survey, compensation is $50

Breast Cancer patients United States
5-minute online survey, compensation is access to a medical record collection service

Breast Cancer (BC) patients United States
30-minute web-assisted phone interview, compensation is $60

Breast Cancer (BC) patients United States
30 to 60-minute initial web-assisted phone interview with potential for follow-up video opportunities, compensation is $120 for the interview

Breast Cancer (BC) patients ages 18-65 diagnosed within the last few years United States
15 minute online survey, compensation is $40

Bladder Cancer patients and caregivers United States
60-minute web-assisted phone interview plus a 15-minute homework assignment, compensation is $150

Bronchiectasis, Mycobacterium Avium Complex (MAC), Nontuberculous Mycobacterial (NTM) United States

Cardiovascular Disease, High Blood Pressure (Hypertension, HBP), Hispanic or Latino/Latina patients fluent in Spanish United States
75-minute web-assisted phone interview, compensation is $150

Cervical Cancer, Endometrial Cancer, Lung Cancer: Non-Small Cell Lung Cancer (NSCLC), Stomach (Gastric) Cancer patients United States
45-minute web-assisted phone interview, compensation is $150

Chronic Idiopathic Urticaria (CIU), Chronic Spontaneous Urticaria (CSU) patients United States
60-minute web-assisted phone interview with potential for follow-up video opportunities,c compensation is $120

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) patients United States
60-minute web-assisted phone interview, compensation is $120

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) patients United States
medical record service sign up, compensation is $75 for the initial signup

Chronic Obstructive Pulmonary Disease (COPD) patients United States
60-minute web-assisted phone interview, compensation is $120

Colorectal (Colon) Cancer patients United States
30-minute online survey, compensation is $60

Colorectal (Colon) Cancer patients United States
60-minute web-assisted phone interview, compensation is $120

Congenital Adrenal Hyperplasia (CAH) patients United States
This is a 5-minute survey for a medical history platform, compensation is a $25 gift card

Crohn's Disease (CD), Microscopic Colitis, Ulcerative Colitis (UC) patients United States
90-minute web-assisted phone interview plus confirmation of diagnosis, compensation is $210

Crohn's Disease (CD), Ulcerative Colitis (UC) patients and caregivers in Chard, PA United States
90-minute in-person interview, compensation is $200 for patients and $225 for caregivers

Cushing's Syndrome (Hypercortisolism) patients and caregivers United States
30-minute online survey, compensation is $60

Cutaneous Lichen Planus patients United States
60-minute web-assisted phone interview, compensation is $167

Cutaneous Lupus Erythematosus (CLE) male patients United States
70-min Virtual Ethnography via Recollective + 60-min Follow Up Interview via Zoom, Compensation is $140 for the Virtual Ethnography and $120 for the follow-up interview

Cystic Fibrosis (CF) patients ages 18 and older and caregivers of patients ages 0-6 United States
25-minute survey, compensation is $50

Dementia caregivers United States
90-minute web-assisted phone interview plus a 60-minute follow-up web-assisted phone interview (confirmation of diagnosis required), compensation is $160 for the initial interview + $110 for the follow-up interview + $50 for confirmation of diagnosis

Diabetes (DM): Type 2, Obesity Hispanic or Latino/Latina patients fluent in Spanish United States
75-minute web-assisted phone interview, compensation is $150

Dwarfism: Achondroplasia caregivers United States
30-minute online survey, compensation is $60

Dwarfism: Leri Weill Dyschondrosteosis (LWD), Human Growth Hormone Deficiency (GHD): Turner Syndrome (TS), Noonan Syndrome (NS) caregivers of patients ages 3-14 and patients ages 8-14 (with caregiver's consent to participate) United States
90-minute web-assisted phone interview (caregivers) or 75-minute web-assisted phone interview (patient), compensation is $150

Endometrial Cancer patients United States
90-minute web-assisted phone interview, compensation is $200

Eosinophilic Esophagitis (EOE) patients United States
60-minute web-assisted phone interview, compensation is $120

Epilepsy: Dravet Syndrome (DS) caregivers United States
30-minute online survey, compensation is $60

Epilepsy: Focal Seizures (Partial Seizures) patients and caregivers of pediatric patients (ages 1-17) who have taken Briviact United States
30-minute online survey, compensation is $60

Epilepsy: Infantile Spasms (IS) caregivers of patients ages 0-5 United States
15-minute online survey plus a 45-minute phone interview (confirmation of diagnosis required), compensation is a total of $130

Essential Tremor, Parkinson's Disease (PD) patients United States
15-minute survey, compensation is $30

Glycogen Storage Disease Type Ia (GSDIa) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Heart Disease: Cardiomyopathy patients and caregivers United States

Heart Disease with High Cholesterol (Hyperlipidemia) Asian female patients United States
90-minute focus group, compensation is a $150 electronic Amazon gift card

Heart Disease patients United States
5-minute survey

Heart Disease: Pericarditis patients United States
30-minute online survey, compensation is $105

Heart Disease: Heart Attack (MI), Stroke patients United States
30 to 60-minute initial web-assisted phone interview with potential for follow-up video opportunities, compensation is $120 for the interview

Hemochromatosis (Iron Overload) patients United States
90-minute web-assisted phone interview plus confirmation of diagnosis, compensation is $230

Hemophilia A patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Hemophilia A patients and caregivers United States
60-minute web-assisted phone interview plus a 15-minute homework assignment, compensation is $120 for the interview and $30 for the homework assignment

Hemophilia A patients (ages 18-34) and caregivers United States
30-minute online survey, compensation is $60

Hemophilia A patients (who previously used Altuviiio) and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Hemophilia B caregivers of patients born in 2007 or later United States
60-minute web-assisted phone interview, compensation is $120

Hepatitis: Hepatitis B (Hep B) patients United States
45-minute web-assisted phone interview, compensation is $90

Hepatitis: Hepatitis B (Hep B) patients who are immigrants from East Asia currently living in United States
20-minute online survey, compensation is $40

Hepatitis: Hepatitis C (Hep C) male or Non-Caucasian female patients United States
Preliminary interview with the possibility for a 3-year long opportunity with various participation options, compensation is $100/hour

Hepatitis: Hepatitis C (Hep C) patients United States
20-minute online survey, compensation is $40

HER2 Positive Cancer patients United States
60-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $120 for the interview

Hypoparathyroidism caregivers of patients ages 12-17 United States
60-75 minute web-assisted phone interview, compensation is $150

Hypophosphatasia (HPP) caregivers United States

Immune Thrombocytopenic Purpura (ITP) patients United States
60-minute web-assisted phone interview, compensation is $120

IgA Nephropathy (Berger's Disease) patients and caregivers United States

Interstitial Lung Disease (ILD), Pulmonary Fibrosis (PF) caregivers of male patients currently using Tyvaso DPI United States
30-minute interview with the possibility of a 1 - 3.5 hour video creation opportunity, compensation is $50 for the initial interview and $100/hour for the video opportunity

Kidney Disease: Complement-3 Glomerulopathy (C3G) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Kidney Disease: IgA Nephropathy (Berger's Disease) patients United States
60-minute web-assisted phone interview plus a homework assignment, compensation is $120 for the interview and $30 for the homework assignment

Kidney Disease: IgA Nephropathy (Berger's Disease) patients United States
90-minute web-assisted phone interview, compensation is $150

Kidney Disease: IgA Nephropathy (Berger's Disease) patients ages 18-64 in California, Connecticut, Florida, Illinois, Indiana, New Jersey, New York, Texas, Wisconsin United States
60-minute web-assisted phone interview, compensation is $250

Kidney Disease patients United States
60-minute web-assisted phone interview, compensation is $120

Kidney Disease: Polycystic Kidney Disease (PKD) patients United States
60-minute web-assisted phone interview plus a 45-minute week-long diary, compensation is $120 for the interview and $90 for the follow up diary

Leukemia: Acute Myeloid Leukemia (AML) patients and caregivers United States
45-minute web-assisted phone interview plus a 15-minute homework assignment, compensation is $125 for the interview and $50 for the homework assignment

Leukemia: Acute Myeloid Leukemia (AML) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $150

Leukemia: Chronic Lymphocytic Leukemia (CLL) and Non-Hodgkin's Lymphoma (NHL): Diffuse Large B Cell Lymphoma (DLBCL) patients United States
10-minute online survey, compensation is $25

Leukemia: Chronic Lymphocytic Leukemia (CLL), Non-Hodgkin's Lymphoma (NHL): Diffuse Large B Cell Lymphoma (DLBCL), Non-Hodgkin's Lymphoma (NHL): Follicular Lymphoma patients United States
25-minute online survey, compensation is $50

Leukemia: Chronic Lymphocytic Leukemia (CLL) patients United States
60-minute web-assisted phone interview, compensation is $100

Leukemia: Chronic Myeloid (Myelogenous) Leukemia (CML) male patients United States
30-minute online survey, compensation is $60

Liver Disease (not hepatitis): NASH/MASH male patients United States
30-minute web-assisted phone interview, compensation is $60

Lung Cancer: Non-Small Cell Lung Cancer (NSCLC) male patients United States
60-minute web-assisted phone interview, compensation is $120

Lung Cancer: Non-Small Cell Lung Cancer (NSCLC) patients United States
60-minute web-assisted phone interview, compensation is $120

Lung Cancer: Non-Small Cell Lung Cancer (NSCLC) patients United States
30-minute online survey, compensation is $90

Lung Cancer: Non-Small Cell Lung Cancer (NSCLC) patients United States
20-minute online survey, compensation is $40

Lung Cancer: Small Cell Lung Cancer patients and caregivers United States
60-minute web-assisted phone interview for patients and 90-minute web-assisted phone interview for caregivers, compensation is $153.60/patient and $233.70/caregiver

Lupus: Systemic Lupus Erythematosus (SLE) non-Caucasian patients United States
30-minute online survey, compensation is $60

Lymphoma patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Macular Degeneration: Geographic Atrophy patients ages 50+ and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Macular Telangiectasia (MacTel) patients United States
60-minute web-assisted phone interview, compensation is $120

Menopause Hispanic patients United States
60-minute web-assisted phone interview, compensation is $120

Multiple Myeloma (MM) patients United States
20-minute online survey, compensation is $40

Multiple Myeloma (MM) African-American patients United States
30-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $60 for the interview

Multiple Myeloma (MM) patients and caregivers United States
30-minute online survey, compensation is $60

Multiple Sclerosis: Clinically Isolated Syndrome (CIS), Relapsing Remitting MS (RRMS), Secondary Progressive MS (SPMS) patients ages 18-65 not living in Vermont United States
20-minute online survey, compensation is $40

Multiple Sclerosis (MS): Relapsing Remitting MS (RRMS), Multiple Sclerosis (MS): Secondary Progressive MS (SPMS) caregivers United States
25-minute online survey, compensation is $50

Muscular Dystrophy (MD): Facioscapulohumeral Muscular Dystrophy (FSH), Spinal Muscular Atrophy (SMA) patients and caregivers United States
60-minute in person interview, compensation is $180

Myasthenia Gravis (MG) female patients ages 30-40 and male patients age 55+ United States
60-minute web-assisted phone interview, compensation is $120

Myasthenia Gravis (MG), Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) caregivers of pediatric patients United States
60-minute web-assisted phone interview, compensation is $120

Myasthenia Gravis (MG) patients United States
60-minute web-assisted phone interview, compensation is $120

Myasthenia Gravis (MG) patients and caregivers in Denver, CO; Tampa, FL; Orlando, FL; Chicago, IL; Charlotte, NC; Raleigh, NC; Manhattan, NY; Cincinnati, OH; Columbus, OH United States
60-minute in-person interview, compensation is $180

Myelofibrosis patients United States
45-minute online survey, compensation is $90

Myelofibrosis (MF) patients United States
25-minute online survey, compensation is$50

Neuroendocrine Cancer (NET) patients and caregivers United States
40-minute web-assisted phone interview + 20-minute web-assisted phone interview, compensation is $80 for the 40-minute interview and $40 for the 20-minute interview

Neurofibromatosis Type 1 (NF1) patients and caregivers United States
30-minute online survey, compensation is $60

Neurotrophic Kerati patients United States
60-minute web-assisted phone interview, compensation is $120

Niemann-Pick Disease patients who are Patient Advocacy Group Leaders United States
45-minute web-assisted phone interview, compensation is $180

Niemann-Pick Disease: Type C (NPC) patients United States
60-minute web-assisted phone interview, compensation is $120

Non-Clear Cell Renal Cell Carcinoma (Kidney Cancer, RCC) patients United States
60-minute web-assisted phone interview, compensation is $120

Non-Hodgkin's Lymphoma (NHL): Diffuse Large B Cell Lymphoma (DLBCL) patients on CART Therapy and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Non-Hodgkin's Lymphoma (NHL): Diffuse Large B Cell Lymphoma (DLBCL), Leukemia: Chronic Lymphocytic Leukemia (CLL) patients United States
30-minute online survey, compensation is $60

Non-Hodgkin's Lymphoma (NHL): Follicular Lymphoma patients United States
60-minute web-assisted phone interview, compensation is $120

Non-Hodgkin's Lymphoma (NHL): Follicular Lymphoma patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

nrSPMS patients United States
30-minute online survey, compensation is $60

Osteoporosis Hispanic patients ages 55 and older United States
Preliminary interview with the possibility for a 3-year long opportunity with various participation options, compensation is $120/hour

Pancreatic Cancer patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Parkinson's Disease (PD) patients United States
15-minute online survey, compensation is $30

Paroxysmal Nocturnal Hemoglobinuria (PNH) patients United States
45-minute online survey, compensation is $90

Paroxysmal Nocturnal Hemoglobinuria (PNH) patients United States
45-minute online survey, compensation is $90

Paroxysmal Nocturnal Hemoglobinuria (PNH) patients United States
40-minute online survey, compensation is $150

Pediatric Low-Grade Glioma (pLGG) caregivers of recently diagnosed patients ages 1-17 United States
60-minute web-assisted phone interview, compensation is $120

Platinum Resistant Ovarian Cancer patients United States
60-minute web-assisted phone interview, compensation is $120

Polycystic Ovarian Syndrome (PCOS) patients United States

Prostate Cancer patients United States
10-minute online survey, compensation is $25

Prostate Cancer patients United States
30-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $60 for the interview

Prostate Cancer patients ages 45+ United States
30-minute online survey, compensation is $60

Prostate Cancer patients ages 45+ United States
15-minute online survey, compensation is $30

Psoriasis: Generalized Pustular Psoriasis (GPP) patients United States
Advisory board in Dallas, TX, compensation is $95 per hour plus travel accommodations

Psoriasis (PSO), Psoriatic Arthritis (PsA) African American, Asian, Hispanic patients United States
60-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $120 for the interview

Psoriasis (PsO), Psoriatic Arthritis (PsA) patients United States
60-minute web-assisted phone interview, compensation is $120

Psoriatic Arthritis (PsA) patients United States
60-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $120

Pulmonary Arterial Hypertension (PAH) male patients taking Tyvaso DPI United States
30-minute interview with the possibility of a 1 - 3.5 hour video creation opportunity, compensation is $50 for the initial interview and $100/hour for the video opportunity

Pulmonary Arterial Hypertension (PAH) patients United States
60-minute web-assisted phone interview, compensation is $120

Pulmonary Fibrosis (PF): Idiopathic Pulmonary Fibrosis (IPF) or Progressive Pulmonary Fibrosis (PPF) patients United States
30-minute online survey, compensation is $60

Retinal Vein Occlusion, Vision Impairment: Diabetic Macular Edema (DME), Macular Degeneration: Wet Macular Degeneration patients United States
60-minute web-assisted phone interview, compensation is $120

Rheumatoid Arthritis (RA) patients United States
30-minute online survey, compensation is $50

Rheumatoid Arthritis (RA) patients United States
30 to 60-minute initial web-assisted phone interview with potential for follow-up video opportunities, compensation is $120 for the interview

Schizophrenia patients United States
30-minute online survey plus a 60-minute follow-up interview, compensation is $60 for the survey and $120 for the follow-up interview

Schizophrenia patients United States
30-minute online survey, compensation is $60

Scleroderma: Diffuse Systemic Scleroderma, Scleroderma: Limited, Scleroderma: Systemic Scleroderma patients United States
60-minute web-assisted phone interview, compensation is $125

Scleroderma, Systemic Sclerosis (SSc) patients United States
45-minute web-assisted phone interview, compensation is $100

Sickle Cell Disease (SCD) patients ages 18-30 United States
15-minute online survey, compensation is a $25 Amazon gift card

Sinusitis: Rhinosinusitis patients United States
45-minute web-assisted phone interview, compensation is $60

Sjogren's Syndrome (SjS, SS) male patients United States
60-minute web-assisted phone interview, compensation is $120

Spinal Muscular Atrophy (SMA) patients United States
60-minute web-assisted phone interview plus 30-minute APP testing, compensation is up to $180

Stomach (Gastric) Cancer patients and caregivers United States
30-minute pre-work assignment plus a 60-minute web-assisted phone interview, compensation is $60 for the pre-work assignment and $120 for the interview

Thalassemia: Alpha-Thalassemia, Beta Thalassemia (Cooley’s Anemia) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Thyroid Eye Disease (TED) female patients United States
30-minute online survey, compensation is $60

Thyroid Eye Disease (TED) patients United States
30-minute online survey, compensation is $70

Transthyretin Amyloidosis (ATTR) caregivers United States
60-minute web-assisted phone interview, compensation is $120

Ulcerative Colitis patients United States
30-minute online survey, compensation is $50

Urticaria (Hives): Chronic Spontaneous patients ages 18 and over and caregivers of patients ages 12 and older United States
60-minute web-assisted phone interview with potential for follow-up video opportunities, compensation is $120

Vasculitis patients United States
60-minute web-assisted phone interview, compensation is $120

Vision Impairment: Retinitis Pigmentosa patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120

Vision Impairment: X-Linked Retinoschisis (XLRS) patients and caregivers of patients ages 1-17 United States75-minute Zoom Interview (laptop/desktop required), compensation is $150

Vitiligo: Non-Segmental Vitiligo (NSV) patients United States
2-minute prescreener

Vitiligo patients ages 18+ United States
60-minute web-assisted phone interview, compensation is $120

X-Linked Hypophosphatemia (XLH) patients United States
60-minute web-assisted phone interview, compensation is $120

Canada

Amyloidosis: ATTR-CM patients Canada
60-minute web-assisted phone interview, compensation is $160 CAD

 

United Kingdom

Amyloidosis: ATTR-CM patients United Kingdom

Asthma, Nasal Polyps patients United Kingdom
120-minute online bulletin board plus a 2-hour follow-up focus group

Bladder Cancer (BC), Colorectal (Colon) Cancer, Stomach (Gastric) patients United Kingdom
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 50 GBP (prework assignment), 150 GBP (web-assisted phone interview), and 25 GBP (Confirmation of Diagnosis)

Breast Cancer (BC), Cervical Cancer, Ovarian Cancer patients United Kingdom
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 50 GBP (prework assignment), 150 GBP (web-assisted phone interview), and 25 GBP (Confirmation of Diagnosis)

Cutaneous Lichen Planus patients United Kingdom
60-minute web-assisted phone interview, compensation is $125 GBP

Eczema (Atopic Dermatitis) male patients United Kingdom
25-minute online survey, compensation is 40 GBP

Epidermolysis Bullosa (EB): Recessive Dystrophic Epidermolysis Bullosa patient advocacy groups (PAG's) United Kingdom
60-minute web-assisted phone interview, compensation is 100 GBP

Esophageal Cancer, Gastroesophageal Junction Cancer, Stomach (Gastric) Cancer patients and caregivers United Kingdom
120-minute online bulletin board plus a 75-minute follow-up web-assisted phone interview for patients or a 90-minute web-assisted follow-up phone interview for patient/caregiver duo, compensation is 140 GBP for the online bulletin board, 88 GBP for the patient follow-up interview, and 105 GBP for the patient/caregiver follow-up interview **The market research study is commissioned by a pharmaceutical company**

Extrapulmonary Neuroendocrine Carcinoma (EP-NEC), Pancreatic Cancer, Stomach (Gastric) patients United Kingdom
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 50 GBP (prework assignment), 150 GBP (web-assisted phone interview), and 25 GBP (Confirmation of Diagnosis)

Hereditary Angioedema (HAE) patients United Kingdom
1-2 minute survey

Hereditary Angioedema (HAE) patients United Kingdom
45-minute web-assisted phone interview or 30-minute online survey, compensation is 70 GBP for the interview and 50 GBP for the survey

Hypoparathyroidism caregivers of patients ages 12-17 United Kingdom60-75 minute web-assisted phone interview, compensation is $110 GBP

Myopathy, Thyroid Eye Disease (TED) patients United Kingdom
60-minute web-assisted phone interview, compensation is 120 GBP

Pompe Disease patients and caregivers United Kingdom
15-minute online survey, compensation is 50 GBP

Prostate Cancer patients patients United Kingdom
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 50 GBP (prework assignment), 150 GBP (web-assisted phone interview), and 25 GBP (Confirmation of Diagnosis)

France

Amyloidosis: ATTR-CM patients France

Asthma, Nasal Polyps patients France
120-minute online bulletin board plus a 2-hour follow-up focus group

Esophageal Cancer, Stomach (Gastric) Cancer patients and caregivers France
120-minute online bulletin board plus a 75-minute web-assisted follow-up phone interview for patients, compensation is 120 EUROS for the online bulletin board and 75 EUROS for the patient follow-up interview

Germany

Asthma, Nasal Polyps patients Germany
120-minute online bulletin board plus a 2-hour follow-up focus group

Myopathy, Thyroid Eye Disease (TED) patients Germany
60-minute web-assisted phone interview, compensation is 80 Euros

Italy

Asthma, Nasal Polyps patients Italy
120-minute online bulletin board plus a 2-hour follow-up focus group

Bladder Cancer (BC), Colorectal (Colon) Cancer, Stomach (Gastric) Cancer patients Italy
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 30 Euros (prework assignment), 120 Euros (web-assisted phone interview), and 30 Euros (Confirmation of Diagnosis)

Breast Cancer (BC), Cervical Cancer, Ovarian Cancer patients Italy
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 30 Euros (prework assignment), 120 Euros (web-assisted phone interview), and 30 Euros (Confirmation of Diagnosis)

Extrapulmonary Neuroendocrine Carcinoma (EP-NEC), Pancreatic Cancer patients Italy
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 30 Euros (prework assignment), 120 Euros (web-assisted phone interview), and 30 Euros (Confirmation of Diagnosis)

Prostate Cancer patients Italy
30-minute prework assignment + 60-minute web-assisted phone interview + confirmation of diagnosis, compensation is 30 Euros (prework assignment), 120 Euros (web-assisted phone interview), and 30 Euros (Confirmation of Diagnosis)

Spain

Asthma, Nasal Polyps patients Spain
120-minute online bulletin board plus a 2-hour follow-up focus group

Australia

More studies coming soon!

New Zealand

More studies coming soon!

 

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Rare Patient Voice presents various opportunities worldwide for patients and caregivers to participate in rare disease clinical trials with a patient-centric approach.

Sign up for these clinical trial opportunities and help move science forward today.

 

Please contact study.inquiries@rarepatientvoice.com with any questions.