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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

DE&I Discussions and the Disability Community: Making the Connection

February 10, 2022 Laura Mullen

DE&I–diversity, equity, and inclusion–is a critical topic these days, particularly in the workplace where all people deserve a level playing field. Around the world, there are an estimated 1.3 billion … READ MORE

Filed Under: Business, Media Mentions, Patient Tagged With: accommodations, DEI, disability community, Rare Revolution Magazine

Patients in Australia and New Zealand Can Now Make Their Voices Heard!

February 9, 2022 Laura Mullen

Rare Patient Voice Announces Expansion of Patient Panel to Two New Countries TOWSON, MD, February 9, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has … READ MORE

Filed Under: Business, Patient, Press Releases Tagged With: Australia, Caregivers, New Zealand, panel, Rare Patient Voice, Wes Michael

Weekly Warrior: Meet Kerry

February 2, 2022 Laura Mullen

“Hi everyone! Kerry AKA @buttahflyk here. I’m a happy hippie trying to do some good in the world, living with a bunch of chronic illnesses that only THINK they can … READ MORE

Filed Under: Patient Tagged With: Arthritis, neuropathy, Sarcoidosis

Weekly Warrior: Meet Carin

January 26, 2022 Laura Mullen

In 2015, Carin survived a Type A aortic dissection. This means the inner layer of the aorta tore. The aorta is the main artery that carries blood throughout the entire … READ MORE

Filed Under: Patient Tagged With: aortic disease, aortichope.org, Crohn’s disease, thinkaorta.us, Type A aortic dissection

RPV to participate in “Straight Talk on Clinical Trials,” free webinar hosted by CISCRP, 2.16.2022

January 24, 2022 Laura Mullen

It’s clear that the patient voice is essential to progress in research, but engaging patients for participation in clinical trials can be surprisingly challenging. This is particularly true in rare … READ MORE

Filed Under: Business, Media Mentions, Patient Tagged With: CISCRP, clinical trials, Informa Pharma Intelligence, Mike Wenger, Straight Talk on Clinical Trials, webinar, Wes Michael

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