“I’m Jenny & I have the rare genetic disease Familial Adenomatous Polyposis. FAP causes 100s to 1,000s of precancerous colon polyps to develop at a young age and these polyps may develop anywhere in the GI tract. There are several extra-colonic manifestations that may occur including elevated risk for other cancers. I had my 1st surgery to remove my colon at age 9 with an ileostomy. I experienced life threatening complications resulting in 4 more surgeries within the span of a year. Due to these complications, a part of my small intestine was also removed resulting in the development of a 2nd rare disease, Short Bowel Syndrome.
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