Leading up to International Women’s Day 2022 on March 8, members of the Rare Patient Voice leadership team reflected on female leadership, team work, role models, and lessons they’ve learned … READ MORE
A Rare Disease Day Message from RPV
#RareDiseaseDay is a time to raise awareness of the issues facing over 300 million people living with rare diseases worldwide. At Rare Patient Voice, we are committed to bringing the … READ MORE
According to New Report, Today’s Diagnostic Journey for Patients Shows Progress – But Unevenly
Rare Patient Voice and MediFind Publish “The Long and Winding Road to Care: Today’s Journey to Diagnosis and Treatment for Patients Living with Complex Diseases, including Rare Diseases” TOWSON, MD, … READ MORE
DE&I Discussions and the Disability Community: Making the Connection
DE&I–diversity, equity, and inclusion–is a critical topic these days, particularly in the workplace where all people deserve a level playing field. Around the world, there are an estimated 1.3 billion … READ MORE
Patients in Australia and New Zealand Can Now Make Their Voices Heard!
Rare Patient Voice Announces Expansion of Patient Panel to Two New Countries TOWSON, MD, February 9, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has … READ MORE
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