In May, RPV Senior Vice President Pam Cusick was interviewed on market research veteran Laura Nozicka’s new podcast, “Desperate for a Diagnosis.” The conversation focused on the power of the … READ MORE
Meet Our Team: Christina Cooper, Project Scheduler
Christina Cooper began working for Rare Patient Voice as a Project Scheduler in 2022. She joined the RPV team because she is passionate about helping people and making a … READ MORE
Meet Our Team: Sarah Sanders, Senior Project Manager
Sarah Sanders earned a Bachelor of Arts from Towson University in 2017 with a degree in Environmental Biology. She started at Rare Patient Voice in 2016 helping with data entry, … READ MORE
Once Upon a Gene Episode with RPV’S Wes Michael on Sharing Your Voice
When she learned that her son Ford had been born with an extremely rare genetic condition – CTNNB1 syndrome – Effie Parks dove into the world of advocacy. Now, … READ MORE
Wes Michael Honored with 2023 Pinnacle Award from MM+M
On April 4, 2023, RPV President and Founder Wes Michael was honored with a 2023 Pinnacle Award from MM+M, which honors leaders who have significantly impacted the medical marketing business … READ MORE
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