Press Releases
Interviews
Here are some highlights of members of the Rare Patient Voice leadership team in recent interviews.
On “The Scope of Things,” Wes Michael spoke about how researchers need to hear what’s important to patients instead of making assumptions.
On "Spoon Full of Strength," Pam Cusick shared how many people want to participate in research to help patients in the future, even if the results will not benefit them directly.
On the "Run Radio Podcast," Pam Cusick spoke about how patients are truly the experts on their own conditions.
On "The Bridge" podcast, Pam Cusick discussed the intersection of rare diseases and disabilities.
