I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard by participating in paid surveys, interviews, and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Already a member?
Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.
In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Why Sign Up with RPV?
Provide your input to improve products and services.
Help companies and researchers focus more on your disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Weekly Warrior: Meet Kait
Kait from Monterey, CA is our latest Weekly Warrior. She lives with Miserable malalignment syndrome (MMS), a rare condition that can cause pain and discomfort in the joints. Kait shares … READ MORE
Weekly Warrior: Meet Vanessa
Vanessa from Austin, TX is our latest Weekly Warrior. She lives with multiple chronic illnesses including Addison’s disease, which destroys the adrenal glands. Previously a very physically active person, Vanessa … READ MORE
Meet Our Team: Madeline Nylen, Scheduler
Madeline joined the Rare Patient Voice field operations team in 2023 as a scheduler. She earned a BS in Accounting from the University of North Alabama and currently resides in … READ MORE
RPV’s Wes Michael on American Marketing Association Podcast
In a world where marketing is everything, and everything is marketing, the AMA Marketing/And podcast explores the idea that everything can be a marketing conversation. In this episode, Getting It Right and … READ MORE