Leading up to Rare Disease Day 2024, RPV President and Founder Wes Michael was interviewed on It Happened to Me: A Rare Disease & Medical Challenges Podcast, and the episode … READ MORE
Meet Our Team: Brooke Neal, Patient Advocacy Associate
Brooke first joined Rare Patient Voice in 2020 as a Data Specialist and Outreach Associate, and is now a Patient Advocacy Associate. She is a mom to Bexton, who was … READ MORE
A Closer Look at RPV’s Role in Research
As a lead up to Rare Disease Day 2024, PicnicHealth recently interviewed Rare Patient Voice‘s Marketing and Communications Director, Laura Mullen, on RPV’s role in research, how we work with … READ MORE
The Gold Standard: Quality Takes Time
Rare Patient Voice President and Founder Wes Michael discusses why it’s not always easy to become a member of RPV. The simple answer is: quality takes time. We have to … READ MORE
Meet Our Team: Ben Shedlock, Director of Field Operations
After earning a BA in Business Marketing from Maryland’s Towson University, Ben joined Rare Patient Voice in 2014 alongside Wes Michael as the first full time team member. As Director … READ MORE
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