Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE
The Voices of Family Caregivers Need to Be Heard
Helping to care for a loved one living with a rare disease or chronic illness can be a life-changing experience for both patient and caregiver. It can be very difficult … READ MORE
Meet Our Team: Cheryll Davies, Assistant Project Manager
A graduate of Pennsylvania’s Marywood University with a BFA in Graphic Design, Cheryll worked as a graphic artist and customer workflow coordinator at a local newspaper after college. Working in … READ MORE
Revolutionizing Patient Recruitment and Market Research
Revolutionizing Patient Recruitment and Market Research An in-depth interview with Pam Cusick, Senior Vice President, Rare Patient Voice, by Ron Morris, Digital Ad Xperts In the ever-evolving landscape of patient … READ MORE
Who Is Being Excluded From DEI? An Article by RPV’s Pam Cusick
In a recent article for Greenbook.org, Rare Patient Voice Senior Vice President Pam Cusick explores the often overlooked aspect of DE&I: including people with disabilities in market research. https://www.greenbook.org/insights/healthcare-medical-and-pharma-market-research/who-is-being-excluded-from-dei
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