My name is Amanda and I’m an RPV Patient Panelist who’s overcoming a bleeding and platelet disorder.

Thanks for taking the time to watch my video. I was asked why I joined Rare Patient Voice and how long I've been a member. I've been a member for probably about four years. I joined because I want my voice to be heard. I need my opinions to matter. Getting paid to do surveys is a bonus. It's a little extra in your pocket for making your opinion matter. Sometimes the surveys are five minutes. Sometimes, they're three days, but they compensate well, it's worth the effort, they're courteous about working with your work schedule. If you work outside the home, there's nighttime hours, daytime hours. It's worth taking a look at.