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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Clinical Trial Opportunities for Patients and Family Caregivers

Clinical research is the study of health and illness in people. Scientists may have many reasons for doing a clinical study, such as:

  • To explore the cause of a disease or a set of symptoms
  • To test if a treatment will help with a symptom or condition
  • To learn how a certain behavior affects people’s health

We currently have a number of clinical research studies open for patients and family caregivers. Links to the clinical trials we are working to fill immediately are listed below.

If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact study.inquiries@rarepatientvoice.com.

If you are NOT currently a member and are looking for study volunteer opportunities, please complete this sign-up process and include all medical conditions to be considered for one or more of the clinical trials listed below and any other similar research studies.

United States

Hereditary Angioedema (HAE) Type 1 & Type 2 patients Clinical Trial United States

Let’s advance lower limb spasticity research together. United States
Take the next step toward advancing research. Enroll now. (Columbia (Missouri), Pittsburgh (PA), and New York/Connecticut)
Sign up here ~ https://rarepatientvoice.com/ClinicalTrials/

Lupus patients clinical trial
Sign up here ~ https://rarepatientvoice.com/ClinicalTrials/

Canada

No clinical trials at this time.

United Kingdom

No clinical trials at this time.

Germany

No clinical trials at this time.

France

No clinical trials at this time.

Italy

No clinical trials at this time.

Spain

No clinical trials at this time.

Australia

No clinical trials at this time.

 

Latest Blog Posts

  • Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research
  • Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
  • Sharing My Voice: Kathryn’s Story
  • Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
  • Meet Our Team: Patrick Kobrick, Business Development Associate

Check out our YouTube Channel

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

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What’s New at Rare Patient Voice?

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