We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below.
If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact Debi Crist at debi.crist@rarepatientvoice.com
If you are NOT a member, please click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies.
Please feel free to share the link with friends or family who may qualify, and they’ll be invited to join Rare Patient Voice and invited to take part in the study!
NUT Carcinoma Patients
55 min Phone Interview and Compensation is $85
Hepatocellular Carcinoma Patients and Caregivers
30 min Online Survey and Compensation is $75
Patent Foramen Ovale Patients
60 min Phone Interview and Compensation is $100
Liver Cancer Patients
2 hour Online Focus Group and Compensation is $250
Ankylosing Spondylitis Male Patients
60 min Zoom Call and Compensation is $100
Non-Small Cell Lung Cancer Patients & Caregivers
30 min Online Survey and Compensation is $50
Tyrosinemia Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $125
Familial Hypercholesterolemia Patients
45 min Phone Interview and Compensation is $75
Psoriatic Arthritis Patients
45 min Phone Interview and Compensation is $75
Metastatic Prostate Cancer Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Alopecia Caregivers
30 min Online Survey and Compensation is $50
Glaucoma Patients
7 min Online Mobile Friendly Survey and Compensation is $20
Immune Thrombocytopenic Purpura Patients
60 min Web-Assisted Phone Interview and Compensation is $100
Ovarian or Fallopian Tube Cancer Patients
60 min Phone Interview and Compensation is $100
IgAN or aHUS Patients
60 min Phone Interview and Compensation is $125
Angelman Syndrome Patients or Caregivers
60 min Phone Interview and Compensation is $125
Pompe Disease Patients
30 min Web-Assisted Phone Interview and Compensation is $50
Breast Cancer Patients
10 min Online Survey and Compensation $25
Angelman Syndrome Caregivers
15 min Online Survey and Compensation $25
Pancreatic Cancer Patients
60 min Phone Interview and Compensation is $100
Non-Small Cell Lung Cancer Patients
60-min Telephone Interview and Compensation is $125 (+ $75 extra incentive for doctors note of diagnosis confirmation)
Ulcerative Colitis, Crohn's Disease, or Psoriatic Arthritis Caregivers of Pediatric Patients
60 min In-Person Interview in the Philadelphia area and Compensation is $150
Please contact Debi Crist at debi.crist@rarepatientvoice.
