We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below.
If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact Debi Crist at debi.crist@rarepatientvoice.com
If you are NOT a member, please click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies.
Please feel free to share the link with friends or family who may qualify, and they’ll be invited to join Rare Patient Voice and invited to take part in the study!
Tyrosinemia Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $125
Diabetes Patients
35 min Online Survey and Compensation is $55
Hemophilia or Von Willebrand Caregivers of adolescents in Chicago or Philly Areas
3 hour In Person Interview and Compensation is $450 plus Parking
Ulcerative Colitis Patients
35 min Online Survey and Compensation is $55
Amyotrophic Lateral Sclerosis Patients recently diagnosed
60 min Web-Assisted Phone Interview and Compensation is $100
Crohn's or UC Patients
15 min Online Survey and Compensation is $25
Parkinson's Disease Patients
60 min Web-Assisted Phone Interview and Compensation is $90
Transthyretin Cardiac Amyloidosis (ATTR-CM) Patients & Caregivers
45 min Web-Assisted Phone Interview and Compensation is $200
Human Growth Hormone Deficiency Patients & Caregivers
45 min Web-Assisted Phone Interview and Compensation is $200
Gaucher Disease Patients & Caregivers
45 min Web-Assisted Phone Interview and Compensation is $200
Hemophilia Patients & Caregivers
45 min Web-Assisted Phone Interview and Compensation is $200
Acromegaly Patients & Caregivers
45 min Web-Assisted Phone Interview and Compensation is $200
Amyotrophic Lateral Sclerosis (ALS) Patients
30 min Online Survey and Compensation is $50
Metastatic Prostate Cancer Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Psoriatic Arthritis or Psoriasis Patients
60-min Online Chat Session and Compensation is $100
Paroxysmal Nocturnal Hemoglobinuria (PNH) Patients
60 min Online Survey and Compensation is $100
Ulcerative Colitis Patients
45 min Phone Interview and Compensation is $115
Please contact Debi Crist at debi.crist@rarepatientvoice.
