We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below. Click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies. If you don't see a study you might qualify for, complete this form to be considered for our other open studies.
Cerebral Palsy Patients
60 Min In-Person Philadelphia Area
Compensation is $150 + parking validation
Severe Primary IGF-1 Deficiency (Via Human Growth) Caregivers
60 Min Web-Assisted Phone Interview and Compensation is $125
Short Bowel Syndrome Patients
60 Min Web-Assisted Phone Interview and two pre-interview assignments
and Compensation is $190
Aortic Stenosis Patients
25 Min Online Survey and Compensation is a $25 Amazon Gift Card
Amblyopia (lazy eye) Caregiver & their Pediatric Patient
60 Min Web-Assisted Phone Interview and Compensation is $100 for both participants
Achondroplasia parents of children ages 3-13
90 minute webcam interview and Compensation is $150
Chronic Pain Patients
60 Min Phone Interview and Compensation is $100
Lymphoma Patients who had CAR T Therapy
60 Min Phone Interview plus 10 Min Homework and Compensation is $120
Endometrial Cancer Patients
This is a 60 min Phone Interview and Compensation is $75
Epidermolysis Bullosa Patients & Caregivers
This is a 75 min Web-Assisted Phone Interview and Compensation is $100
Fabry Disease Patients
This is a 60 min Phone Interview and Compensation is $100
Legg-Calve Perthes Caregivers
This is a 60 min Web-Assisted Phone Interview and Compensation is $100
Niemann-Pick Patients & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Infertility Patients who have undergone 1 or more cycles of IVF over the past 12 months
75 min Web-Assisted Phone Interviews and Compensation is $125
Focal Segmental Glomerulosclerosis Patients
60 min Web-Assisted Phone Interview and Compensation is $100
Duchenne Muscular Dystrophy Caregivers
60 min Phone Interview and Compensation is $100
Upcoming Study Opportunity
Please contact Debi Crist at debi.crist@rarepatientvoice.
