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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Study Opportunities for Patients and Caregivers

We currently have over 100 market research studies open for patients and caregivers.  A few of the studies we are working to fill immediately are listed below.

If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact Debi Crist at debi.crist@rarepatientvoice.com

If you are NOT a member and you are looking for study volunteer opportunities, please complete this sign-up process and include all medical conditions to be considered for one or more of the studies listed below and any other similar studies.

Feel free to also share this page with friends or family who may be interested. 

Become a patient research volunteer today and get paid for your time.

Sign Up Here!

Alcohol use Disorder Patients
60 min Web-Assisted Phone Interview and Compensation is $100

Adrenoleukodystropy Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $150

Hereditary Amyloidosis Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Patent Foramen Ovale (PFO) Patients
Two 45 min Web-Assisted Phone Interviews and Compensation is $150

Alpha 1 Antitrypsin Deficiency Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $90

Non Small Cell Lung Cancer Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Multiple Myeloma or Diffuse large B-cell lymphoma Patients
90 min Phone Interview and Compensation is $150

COPD Patients
45 min Web-Assisted Phone Interview and Compensation is $105

Nasal Polyps Patients
60 min Web-Assisted Phone Interview and Compensation is $125

Ovarian and Fallopian Tube Cancer Patients Diagnosed 2016-2021
60 min Web-Assisted Phone Interview and Compensation is $100

Alzheimer's Disease Patients and Caregivers
45 min Web-Assisted Phone Interview and Compensation is $75

Diffuse Large B-Cell Lymphoma Patients and Caregivers
10 min Survey and Compensation is $40

Limb-girdle Muscular Dystrophies Patients
60 min Webcam Interview and Compensation is $125

Prostate Cancer Patients or Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Achondroplasia Caregivers
30 min Online Survey and Compensation is $50

Cytomegalovirus Patients for a Clinical Trial

Prostate Cancer Patients or Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Achondroplasia Caregivers
30 min Online Survey and Compensation is $50

Follicular Lymphoma Patients or Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100

Osteoporosis Patients in the UK only
60 min Web-Assisted Phone Interview and Compensation is $70

Prurigo Nodularis Patients
90 min Web-Assisted Phone Interview and Compensation is $150

Generalized Pustular Psoriasis (severe subtype of Psoriasis) Canadian Residents
30 min Web-Assisted Phone Interview and Compensation is $50

Ovarian Cancer Patients and Caregivers (Diagnosed in the last 18 months)
60 min Web-Assisted Phone Interview and Compensation is $125

Esophagus (Esophageal) Cancer Patients
75 min Web-Assisted Phone Interview and Compensation is $125

Polycythemia Vera Patients
60 min Web-Assisted phone Interview and Compensation is $100

Bladder Cancer Canada Residents
60 min Web-Assisted phone Interview and Compensation is $100

Neuromyelitis Optica (NMO)
30 min Zoom Interview and Compensation is $30

Allogeneic Hematopoietic Stem Cell Transplant Patients and Caregivers
60 min Web-Assisted phone Interview and Compensation is $100

Melanoma Patients Clinical Trial
Bullous Pemphigoid Patients Age 70 plus

Mantle Cell Lymphoma Patients
60 min Web-Assisted Phone Interview and Compensation is $100

Please contact Debi Crist at debi.crist@rarepatientvoice.com with any questions.

Volunteer for Medical Research Studies Today

We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below. Click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies. If you don't see a study you might qualify for, complete this form to be considered for our other open studies.

In addition, we’re delighted to announce that we will be extending our recruitment services to clinical studies and trials on rare and non-rare medical conditions. Now, you may be invited to take part in these valuable trials, as well. Patients who participate in these clinical research studies can share their insights and experiences to help advance the future of medicine. It’s also worth noting that some of these studies are paid. 

Please feel free to share the link with friends or family who may qualify, and they’ll be invited to join Rare Patient Voice and invited to take part in the study.

Latest Blog Posts

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Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

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