We currently have over 100 market research studies open for patients and caregivers. A few of the studies we are working to fill immediately are listed below.
If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact Debi Crist at debi.crist@rarepatientvoice.com
If you are NOT a member and you are looking for study volunteer opportunities, click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other similar studies.
Feel free to also share the link with friends or family who may be interested.
Become a patient research volunteer today and get paid for your time.
NUT Carcinoma Patients
55 min Phone Interview and Compensation is $85
Tyrosinemia Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $125
Ovarian or Fallopian Tube Cancer Patients Canadian Residents
60 min Phone Interview and Compensation is $100
Breast Cancer Patients
10 min Online Survey and Compensation $25
Foster Care
Looking for those who were in Foster Care
Online Survey 15 minutes and $25 compensation
Non-Small Cell Lung Cancer Canadian Patients
60 min Online Survey and Compensation is $100
Diffuse Large B-Cell Lymphoma or Follicular Lymphoma Patients
5 day online bulletin board (15-20 mins per day) plus 60 min Phone Interview and Compensation is $350
Prostate Cancer Patient & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Bladder Cancer Patients
45 min Web-Assisted Phone Interview and Compensation is $75
Hormonal Insufficiency Patients and Caregivers
60 min Webcam Interview and Compensation is $125
Epilepsy - Cluster Seizure Patients & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Muscle-Invasive Bladder Cancer Patients
60 min Phone Interview and Compensation is $100
Hodgkin's Lymphoma Patients & Caregivers
30 min Online Survey and Compensation is $50
Hemophilia B Patients
60 min Webcam Interview and Compensation is $100
Small Cell Lung Cancer Patients
60 min Web-Assisted Phone Interview and Compensation is $100
Patients on PrEP
20 min Online Survey and Compensation is $35
Nail Psoriasis Patients
45 min Phone Interview and Compensation is $150
Transthyretin Cardiac Amyloidosis (ATTR-CM) Patients & Caregivers
60 min Phone Interview and Compensation is $150
Bladder Cancer Patients
60 min Web-Assisted Survey and Compensation is $75
Pulmonary Arterial Hypertension (PAH) Caregivers
App download and use 4 weeks then delete and Compensation is $50
Myelofibrosis Patients
60 min Phone Interview and Compensation is $100
Tardive Dyskinesia Patients & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $125
Ovarian Cancer Patients
25 min Online Survey and Compensation is $45
ALS Patients or Caregivers
30 min Online Survey and Compensation is $50
Eosinophilic Esophagitis (EOE) Patients
30 min Online Survey and Compensation is $50
Warm Autoimmune Hemolytic Anemia Patients
75 min Phone Interview and Compensation is $150
Nasal Polyps Patients
30 min Online Survey and Compensation is $50
Gorlin Syndrome Patients
30 min Web-Assisted Phone Interview and Compensation is $100
Paroxysmal Nocturnal Hemoglobinuria (PNH) Patients
60 min Web-Assisted Phone Interview and Compensation is $100
Kidney Transplant Patients
60 minute interview plus 45 minute pre-work and Compensation is $275
Hemophilia B Patients & Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
SMA caregivers aged 0-2
30 min Online Survey and Compensation is $50
Catheter Patients
15 min Online Survey and Compensation is $25
Hereditary Hemochromatosis Patients
60 min Web-Assisted Phone Interview and Compensation is $100
Erythropoietic Protoporphyria (EPP) or X-linked protoporphyria (XLP) Patients & Caregivers
60 min Phone Interview and Compensation is $100
CIDP Patients & Caregivers
60 min Phone Interview and Compensation is $100
Ovarian and/or Fallopian Tube Cancer Patients
75 min Web-Assisted Phone Interview and Compensation is $125
Hemophilia B Patients and Caregivers
60 min Web-Assisted Phone Interview and Compensation is $100
Multiple Myeloma Patients
25 min Online Survey and Compensation is $45
Please contact Debi Crist at debi.crist@rarepatientvoice.
Volunteer for Medical Research Studies Today
We currently have over 100 studies open for patients and caregivers! A few of the studies we are working to fill immediately are listed below. Click on the study name to complete the sign-up process and include all medical conditions to be considered for that study and any other relevant studies. If you don't see a study you might qualify for, complete this form to be considered for our other open studies.
In addition, we’re delighted to announce that we will be extending our recruitment services to clinical studies and trials on rare and non-rare medical conditions. Now, you may be invited to take part in these valuable trials, as well. Patients who participate in these clinical research studies can share their insights and experiences to help advance the future of medicine. It’s also worth noting that some of these studies are paid.
Please feel free to share the link with friends or family who may qualify, and they’ll be invited to join Rare Patient Voice and invited to take part in the study.
