• Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Market Access: A Patient Perspective

Overview of the Study

This study was conducted through the collaboration of Patients Rising, Team Type 1 Foundation, and Rare Patient Voice. The market access patients case study looks at how patients with Type 1 Diabetes (T1D) access the care they need to manage their illness and essentially survive.

The study used the data gathered after surveying 229 T1D patients and caregivers.

Summary of the Study

Market access determines the success of new products that enter the world of biotechnology. Viewing market access using the patient’s perspective outlines different insights and issues that may otherwise not be as apparent.

Type 1 Diabetes

The study focuses on patients with T1D, but many of the insights gathered and formulated can be applied to other diseases and conditions.

Insurer Interference

Insurance plays an important role in the life and treatment of T1D patients and caregivers. They can affect the direction and overall outcomes of these treatments.

A majority or 55 percent of the people surveyed report that their insurers have asked them to switch to brands that were not the ones agreed upon with their physicians. Only one percent out of the 55 reported that the new brands were better.

Delayed Response

Over 70 percent also reported that aside from having limited coverage from their policies, they also encounter delays in insurers’ response times.

Out of Pocket Costs

Out of pocket costs remain the top issue when it comes to market access according to T1D patients and caregivers. These people reportedly spend an average of $300 every month for T1D treatment out of their own pockets.

Copay

Only 33 percent of those surveyed have used copay, drug coupons, or drug discounts. Only a quarter of these people have used these discounts to pay down the deductible.

Access to Care

In terms of access to the care they need, some patients and caregivers report either having to go 4-5 hours away to find a qualified endocrinologist or needing to go outside their insurer’s network, which means more out of pocket costs.

Conclusion

Despite most patients and caregivers saying they have some coverage for T1D treatment, there are still many issues including interferences and delays. The majority of the items essential for T1D patients are only partially covered, raising the average out of pocket costs to over $300 per month.

Out of pocket costs are the most common obstacle for patients and caregivers.

T1D is taxing on patients and caregivers. They suffer physically, emotionally, mentally, and financially. Many patients also suffer from other conditions.

Latest Blog Posts

  • Rare Patient Voice Expands to Europe
  • Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner
  • Thanks to WhatNext, Our Terrific Cancer Patient Partner
  • The North Wind and the Sun
  • Should companies do marketing to their market research panels?

Check Out Our YouTube Channel!

https://youtu.be/kPihaNOjekw
HTML tutorial

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

        
   

Rare Patient Voice, LLC, Market Research, Towson, MD
©2020. Rare Patient Voice. All Rights
Reserved. Privacy Policy. Disclaimers. Sitemap

©2021 . All Rights Reserved.

Copyright © 2021 · Genesis Framework · WordPress · Log in

Search Our Website