The lead up to Rare Disease Day continues! RPV’s Pam Cusick recently sat down with communications expert Skot Waldron for an interview on his podcast, “Unlocked with Skot Waldron.” In … READ MORE
Wes Michael Interviewed on Live Life Rare Podcast
As Rare Disease Day 2024 approaches, Rare Patient Voice leadership have been interviewed on a number of rare disease podcasts. On the Life Life Rare podcast, RPV’s Wes Michael talked … READ MORE
It Happened to Me Rare Disease Podcast Interview with Wes Michael
Leading up to Rare Disease Day 2024, RPV President and Founder Wes Michael was interviewed on It Happened to Me: A Rare Disease & Medical Challenges Podcast, and the episode … READ MORE
Weekly Warrior: Meet Peyton
Peyton is our latest Weekly Warrior. She lives with Complex regional pain syndrome (CRPS), which causes severe pain when any affected area is touched. Despite that, she is busy … READ MORE
Weekly Warrior: Meet Mekenzie
Mekenzie, who lives with Crohn’s disease, is our latest Weekly Warror. She is also an RPV staffer and member of our Patient Advocacy team! https://www.linkedin.com/feed/update/urn:li:activity:7164284418306625538
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