Leading up to Rare Disease Day 2024, RPV President and Founder Wes Michael was interviewed on It Happened to Me: A Rare Disease & Medical Challenges Podcast, and the episode … READ MORE
Weekly Warrior: Meet Peyton
Peyton is our latest Weekly Warrior. She lives with Complex regional pain syndrome (CRPS), which causes severe pain when any affected area is touched. Despite that, she is busy … READ MORE
Weekly Warrior: Meet Mekenzie
Mekenzie, who lives with Crohn’s disease, is our latest Weekly Warror. She is also an RPV staffer and member of our Patient Advocacy team! https://www.linkedin.com/feed/update/urn:li:activity:7164284418306625538
Weekly Warriors: Meet Kyla and Bella
Kyla and her daughter Bella are our newest Weekly Warriors. Little Bella was born with cartilage-hair hypoplasia, a rare disorder of bone growth. She has now had two major transplants … READ MORE
A Closer Look at RPV’s Role in Research
As a lead up to Rare Disease Day 2024, PicnicHealth recently interviewed Rare Patient Voice‘s Marketing and Communications Director, Laura Mullen, on RPV’s role in research, how we work with … READ MORE
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