The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in … READ MORE
Meet Our Team: Tiffany White, Director of Business Development
A graduate of the University of Central Florida, Tiffany White joined Rare Patient Voice in 2017 as a Patient Advocate. Currently as the Director of Business Development, she works directly … READ MORE
A 2024 Rare Patient Voice Review
2024 was a big year at Rare Patient Voice! In this video, RPV President Wes Michael shares some highlights and also exciting news for 2025.
RPV Has Rewarded Patients and Caregivers $15 Million+ for Participation in Research
Now entering its 12th year, RPV recruits patients and family caregivers for market research studies, clinical trials, and more. Towson, MD, 1.8.2025 – First launched in 2013, Rare Patient Voice … READ MORE
Season’s Greetings from RPV!
The happiest of holidays to you and yours from all of us, including our zebra mascot Rarity, at Rare Patient Voice!
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