• About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Congratulations to Our Team Members!

March 22, 2024 Laura Mullen

We are excited to share news of some changes within the Rare Patient Voice Field Operations Team. Please join us in congratulating these individuals for their contributions in helping to … READ MORE

Filed Under: Business

Meet Our Team: Jessica Bolden, Business Development Associate

March 20, 2024 Laura Mullen

Meet our team! The staffer in the spotlight this month is Jessica Bolden, who joined Rare Patient Voice as a Business Development Associate in 2022. This role allows her to … READ MORE

Filed Under: Business

Advocating to Give Patients a Voice on Motivational Mondays

March 20, 2024 Laura Mullen

  RPV’s Pam Cusick recently was interviewed by Corey Anthony Powell for “Motivational Mondays,” a weekly conversation with entrepreneurs, authors and leadership experts to unravel the secrets behind success. In … READ MORE

Filed Under: Business

Beyond Clinical Walls Podcast Discusses Patient Centric Trial Design with RPV

March 19, 2024 Laura Mullen

Rare Patient Voice Senior Vice President Pam Cusick was interviewed on the Beyond Clinical Walls podcast, hosted by Dr. Bayo Curry-Winchell, discussing common barriers in clinical trials and their impact … READ MORE

Filed Under: Business

Pam Cusick, Featured Member of Learning Disabilities of America Assoc.

March 13, 2024 Laura Mullen

Last month in Orlando, FL, RPV Senior Vice President Pam Cusick delivered a powerful multimedia presentation on neurodiversity and workplace accommodations at the 61st Annual Learning Disabilities Association of America … READ MORE

Filed Under: Business, Get To Know, Patient

  • « Previous Page
  • 1
  • …
  • 16
  • 17
  • 18
  • 19
  • 20
  • …
  • 53
  • Next Page »

Recent Posts

  • Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company
  • Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
  • Join Us on 2.4 for a Discussion of AI Agents & Patient-Level Data – From Confirmation of Diagnosis to Insights
  • A Look Back at RPV’s 2025
  • Season’s Greetings from Rare Patient Voice!

Check out our YouTube Channel

https://www.youtube.com/watch?v=cfjkqh5Ykp0

Sign Up To Receive Our Quarterly Client Newsletter

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Rare Patient Voice Referral Partner Program
  • Are you a researcher?
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Rare Patient Voice, LLC, Market Research, Towson, MD
Rare Patient Voice, LLC, Market Research, Towson, MD

BHBIA Corporate Member logo
CIRQ 27001 certified logo

EPHMRA Agency Member logo

ESOMAR logo
GSA Member logo
Insights Association Company Member

Intellus Worldwide logo

©2026. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2026 . All Rights Reserved.

Copyright © 2026 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT