At Rare Patient Voice, we love our patients, family caregivers, clients, and colleagues! Our zebra mascot Rarity and all of us at RPV wish all of you a Happy Valentine’s … READ MORE
Learn More About the RPV Premium Outreach Package
The Rare Patient Voice Golden Rule means recruiting the right patients, at the right time, for the right studies. How do we do that? Our Patient Advocacy Team is always … READ MORE
The RPV Golden Rule: Precision in Patient Recruitment
The RPV Golden Rule is simple yet powerful: Recruit the right patients, at the right time, for the right study. With a community of 180,000+ patients and family caregivers spanning 1,500+ … READ MORE
Wes Michael Talks Patient Empowerment on 1 in 20 Rare Disease Podcast
The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in … READ MORE
Meet Our Team: Tiffany White, Director of Business Development
A graduate of the University of Central Florida, Tiffany White joined Rare Patient Voice in 2017 as a Patient Advocate. Currently as the Director of Business Development, she works directly … READ MORE
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