In a special episode of the “I Care for Rare” podcast, host Sherrilynne Starkie and Sandra Markus, founder of I Care for Rare, welcome Rare Patient Voice President Wes Michael to the show in … READ MORE
Elevating Patient Voices for Rare Disease Day and Every Day
Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
Discussing the Importance of Rare Disease Day on Unlocked with Skot Waldron
“Unlocked with Skot Waldron” is a podcast dedicated to empowering and educating people to communicate more effectively. In this episode, Skot Waldron and Rare Patient Voice Senior Vice President … READ MORE
RPV’s Pam Cusick Talks with Empowered Caregivers
“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
Meet Our Team: Rheia Beganovic, Project Manager
Based in Bosnia, Rheia Beganovic has been a Project Manager with Rare Patient Voice since November 2021. Prior to working for RPV, she worked on a passenger cruise ship for … READ MORE
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