Happiest holidays to all of the wonderful patients, family caregivers, and clients we work with all year long. We are very lucky to have you as part of the RPV … READ MORE
Weekly Warrior: Meet Aaron
Aaron from Mississippi is our latest Weekly Warrior. Despite living with Crohns disease and the rare genetic bone disease Hypophosphatasia, working fulltime for a hospital system, and raising three … READ MORE
Meet Our Team: Stacey Haines, Patient and Social Media Outreach Associate
The Rare Patient Voice staffer in the spotlight this month is Stacey Haines, Patient and Social Media Outreach Associate. A graduate of the Institute of Integrative Nutrition, Stacey joined RPV … READ MORE
Weekly Warrior: Meet Nicole
Our latest Weekly Warrior is Nicole, a model/actor/chronic illness advocate originally from Boston and currently living in Los Angeles. Living with Multiple Sclerosis since she was ten hasn’t always been … READ MORE
Weekly Warrior: Meet Amy
Our latest WeeklyWarrior is Amy, a doctoral student, violinist, and violin teacher from Texas. She lives with Ehlers-Danlos syndrome, a rare condition that affects connective tissue. Amy shares her story … READ MORE
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