“Hi, I’m AJ. I’m 19 and I’ve lived with chronic and mental illness since for 13 years with very little answers. We are still searching for answers today. I am … READ MORE
Weekly Warrior: Meet Jamie
“My name is Jamie. I have Asthma, Multiple Sclerosis, Epilepsy, Trigeminal Neuralgia, and GI issues. At 12, I began to have horrible breathing issues that led to the diagnosis of … READ MORE
Pam Cusick Graduates from THRIVE
“Continuing to learn and grow is important to me personally as well as professionally; it keeps me engaged in my job and excited about discovering things that may benefit my … READ MORE
Weekly Warrior: Meet Erika
“Hello, my name is Erika. I was diagnosed with ulcerative colitis in December of 2017. At first I didn’t know what those words meant. I had no idea what that … READ MORE
Meet Our Team: Kirk Munsch, Patient Advocacy Manager
MEET OUR TEAM Rare Patient Voice is made up of dedicated professionals who work to connect clients with rare and non-rare disease patients and family caregivers for all types … READ MORE
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