“My name is Dylan, and I have a condition called MDP that only me and 12 other people have in the world. MDP stands for mandibular dysphasia with deafness and … READ MORE
Weekly Warrior: Meet Brindley
Brindley has suffered from Hidradenitis Suppurativa (HS) for years. Her condition began at the age of 10 as recurrent boil-like abscesses and she wasn’t diagnosed until 16. She didn’t share … READ MORE
Meet Our Team: Rick DeLuca, Project Manager
Rare Patient Voice is made up of dedicated professionals who work to connect clients with rare and non-rare disease patients and family caregivers for all types of research. In this … READ MORE
RPV Releases Pharma’s Most Wanted Patients List, October 2022 vs September 2022 Edition
What are the diseases that are getting the most attention in terms of research and development right now? The answers might surprise you. Last month, Rare Patient Voice debuted its … READ MORE
Weekly Warriors: Meet Dan and Dee
“Hi, we are Dan and Dee, and we recently celebrated our 41st anniversary. Imagine being in your late 50’s and your brain is forgetting how to do those things you … READ MORE
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