Meet our team! Amela Zeljo is a Patient Advocacy Associate with RPV. She’s an American-Bosnian citizen whose background includes marketing, graphic design, and project management. Amela loves helping people and … READ MORE
Wes Michael Discusses Rare Disease Patient Advocacy on MM+M Podcast
The MM+M Podcast features interviews with guests from in and around the industries of pharma, biotech, med-tech ad-tech and health media. In light of Rare Chromosome Awareness Day, Managing Editor Jack … READ MORE
Pam Cusick Discusses RPV’s Mission on Run Radio Podcast
The “Run Radio Podcast” features interviews with guests who share their experiences and insights on entrepreneurship, wellness, and more. In this powerful conversation, host Trina Wilcox and Pam Cusick, SVP … READ MORE
Wes Michael Talks Starting RPV in Qual Recruit Podcast Interview
The Qual Recruit podcast “Insightful Connections” is about all things market research. In this thought-provoking episode, host Sebastian Murdoch-Gibson interviews Wes Michael, President and Founder of Rare Patient Voice. They … READ MORE
Meet Our Team: Tana Karamustafic, Project Manager
Born, raised, and residing to this day in Sarajevo, Bosnia and Herzegovina, Tana Karamustafic joined Rare Patient Voice in 2021 as a Project Manager. Tana volunteered through high school with … READ MORE
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