Congratulations to our President, Wes Michael, on his win of a 2025 Insight250 Award! He joins a prestigious group of MRX professionals being honored this year. The Insight250 Legends are … READ MORE
Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research
Clinical research is key to medical progress, providing the data necessary to develop new treatments, improve outcomes, and offer hope to patients. Nowhere is this hope more urgently needed than … READ MORE
Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
The Pickle Jar Podcast connects people with Adrenal Deficiency around the world. Host Jill Battle was diagnosed with Addison’s disease in 2011. In the most recent episode, Rare Patient Voice … READ MORE
Sharing My Voice: Kathryn’s Story
Kathryn was diagnosed with colon cancer in 2024, and is passionate about contributing to research, specifically research aimed at young adults. She loves working with Rare Patient Voice so much … READ MORE
Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
When a rare disease strikes, we might think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. … READ MORE
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