Now in our tenth year, Rare Patient Voice started out with a focus on market research – but we’ve since branched out! Here, Wes Michael talks about how we recruit patients and family … READ MORE
Weekly Warrior: Meet Connie
Connie is our latest Weekly Warrior. She lives with two complex conditions: a rare bleeding disorder and an autoimmune disease. Connie credits her great support system for helping her stay … READ MORE
10 Facts for 10 Years of RPV: Video #8 – The RPV team is terrific!
Rare Patient Voice staffers live across the country and all work remotely, but share one major thing in common: we love that our work helps patients and family caregivers share … READ MORE
10 Facts for 10 Years of RPV: Video #7 – Security is key at RPV!
We take security seriously at RPV! In his latest video in celebration of our tenth anniversary, President and Founder Wes Michael talks about some of the numerous steps we take … READ MORE
10 Facts for 10 Years of RPV: #6 – Patients Love Sharing Their Voices!
At Rare Patient Voice, we pay patients and family caregivers $120 per hour of their time for participation in research studies. But when asked, that’s not the main reason they give … READ MORE
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