10 years ago, Wes Michael launched Rare Patient Voice in the United States to connect patients and family caregivers with opportunities to take part in research. Since then, our patient … READ MORE
Pam Cusick Honored by Intellus Worldwide for Professional Development
Congratulations to RPV Senior Vice President Pam Cusick, who is being honored by Intellus Worldwide with an Intellus Impact Award for Professional Development. We are proud of Pam’s achievements and … READ MORE
It’s a Three-peat! RPV Ranks Again on the Inc. 5000 List
For the Third Time, Rare Patient Voice Ranks on the Inc. 5000, Coming in at No. 4110 This Year Inc. Magazine Reveals Annual List of America’s Fastest-Growing Private Companies NEW … READ MORE
Weekly Warrior: Meet Hattie
Hattie, a 22 year-old living with epilepsy, is our latest Weekly Warrior. After reaching a low point during the COVID-19 lockdown, she decided to start raising awareness around epilepsy, mental … READ MORE
10 Facts for 10 Years of RPV: #2 – We Are Non-Rare and Rare!
As our tagline notes, the Rare Patient Voice community includes non-rare as well as rare disease patients and family caregivers. We are now 125k+ strong and span more than 1,500 … READ MORE
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