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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

October 4, 2020 Wes Michael

If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and caregivers, and give them a place to share their experiences to help others. We’ve partnered with the group for over 5 years and we love them! They post from time to time to their members to let them know they can take part in our studies. We’ve been able to contribute over $10,000 to We’re Not Drunk for their referrals since that time.

I chuckle each time I say the name, We’re Not Drunk, We Have MS. I can only imagine, they were so tired of people saying, what is wrong with you are your drunk? They are not! They have MS!

We invite We’re Not Drunk patients and caregivers to take part in Rare Patient Voice surveys. You get to voice your opinions on your experiences and react to new treatments in development. All from the comfort of your home through online surveys and telephone and webcam interviews. And you get rewarded for it! We pay patients at the rate of $100 per hour.

Best of all, your confidential information is never shared. Clients only have an ID code, not your name

Some of our Rare Patient Voice team members have MS. I’m always amazed at what they can accomplish while fighting this menacing disease.

 

Filed Under: Community, Patient

Latest Blog Posts

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“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

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