I have important news for patients and clients! After 7 years of inviting patients to studies in the US and Canada, we are now expanding to Europe. We’ve begun recruiting patients to our panel in the UK. And after that, the other key countries in the EU.
In the US we now have 100,000 patients and caregivers covering 496 diseases and conditions, rare and non-rare. They all signed up specifically because they wanted to voice their opinions about their condition and about potential new treatments, to help improve medical products and services. As well as to get paid for their opinions.
Patients from around the world have been asking us when can they also take part. And our clients have also been beating that drum. One recently said, “We would love assistance with markets outside the US. Many of our patient projects have been global lately and it would be nice to have a partner as reliable as RPV in the other markets.”
I founded Rare Patient Voice to give patients and caregivers the opportunity to shape the future of healthcare through voicing their opinions. US patients have loved taking part and earning over $5.3 million for doing so. To be able to offer this opportunity to patients in Europe is the best way I can think of to expand on our vision.
It will take some time to build the panel, but we’re busy working with our friends at Q One Tech, who are the brains behind our database. And we’re being careful to comply with every aspect of GDPR. Usually in-person patient events are a key method we employ to build our panels, and we will in Europe also. But for now, with all those events either canceled or virtual, we’re using other methods – referrals, partnering with advocacy groups, and reaching out online.
So get ready for Rare Patient Voice, Europe!