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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Clinical Trial Opportunities for Patients and Family Caregivers

Clinical research is the study of health and illness in people. Scientists may have many reasons for doing a clinical study, such as:

  • To explore the cause of a disease or a set of symptoms
  • To test if a treatment will help with a symptom or condition
  • To learn how a certain behavior affects people’s health

We currently have a number of clinical research studies open for patients and family caregivers. Links to the clinical trials we are working to fill immediately are listed below.

If you are already a member of Rare Patient Voice and want to be considered for a study listed below, please contact study.inquiries@rarepatientvoice.com.

If you are NOT currently a member and are looking for study volunteer opportunities, please complete this sign-up process and include all medical conditions to be considered for one or more of the clinical trials listed below and any other similar research studies.

United States

ANCA-Associated Vasculitis (AAV or Polyangiitis), Idiopathic Inflammatory Myopathy (IIM or Myositis), Rheumatoid Arthritis (RA), Systemic Sclerosis (SSc or Scleroderma) patients ages 18-70 who have received autoimmune treatments United States

Asthma: Severe Eosinophilic Asthma patients in Warwick, RI (and 60 mile radius) United States

Heart Disease: Cardiomyopathy patients United States

High Cholesterol ( Hypertriglyceridemia ): High Triglycerides patients United States

Tumors Associated With Hypoglycemia (Hyperinsulinism) patients and caregivers United States

Ulcerative Colitis (UC) patients in Ogden UT, New Iberia LA, Yonkers NY (60-mile radius) United States

Von Willebrand Disease (VWD) patients clinical trial United States

 

Canada

High Cholesterol ( Hypertriglyceridemia ): High Triglycerides patients Canada

United Kingdom

High Cholesterol ( Hypertriglyceridemia ): High Triglycerides patients United Kingdom

Germany

No clinical trials at this time.

France

No clinical trials at this time.

Italy

No clinical trials at this time.

Spain

No clinical trials at this time.

Australia

High Cholesterol ( Hypertriglyceridemia ): High Triglycerides patients Australia

 

Recent Posts

  • Wes Michael Interviewed in Leadership Today Blog
  • RPV & Sciensus spotlight rare disease access burden in Europe with ISPOR 2026 poster
  • Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz
  • A Perfect Match in Healthcare Market Research
  • A Discussion of Decentralized Clinical Trials, Diversity, and RPV on All Home Care Matters

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