“I’m Jenny & I have the rare genetic disease Familial Adenomatous Polyposis. FAP causes 100s to 1,000s of precancerous colon polyps to develop at a young age and these polyps … READ MORE
DE&I Discussions and the Disability Community: Making the Connection
DE&I–diversity, equity, and inclusion–is a critical topic these days, particularly in the workplace where all people deserve a level playing field. Around the world, there are an estimated 1.3 billion … READ MORE
Patients in Australia and New Zealand Can Now Make Their Voices Heard!
Rare Patient Voice Announces Expansion of Patient Panel to Two New Countries TOWSON, MD, February 9, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has … READ MORE
Weekly Warrior: Meet Kerry
“Hi everyone! Kerry AKA @buttahflyk here. I’m a happy hippie trying to do some good in the world, living with a bunch of chronic illnesses that only THINK they can … READ MORE
What diseases do we cover?
People often ask us what diseases and conditions we cover. At Rare Patient Voice, we have a panel of over 100k patients and caregivers in the US, Canada, the UK, … READ MORE
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