“Hello, my name is Erika. I was diagnosed with ulcerative colitis in December of 2017. At first I didn’t know what those words meant. I had no idea what that … READ MORE
Meet Our Team: Kirk Munsch, Patient Advocacy Manager
MEET OUR TEAM Rare Patient Voice is made up of dedicated professionals who work to connect clients with rare and non-rare disease patients and family caregivers for all types … READ MORE
RPV Attends 2022 BIONJ Patient Advocacy Summit
On December 13, RPV’s Wes Michael and Laura Mullen took part in a very special event in Lawrenceville, NJ. The 2022 BioNJ Patient Advocacy Summit was a program with the … READ MORE
Weekly Warrior: Meet Amelia
“Hi, my name is Amelia and I was diagnosed with Multiple Sclerosis in 2014 when I was 19. In 2017 I set up a support group for MSers, people awaiting … READ MORE
Weekly Warrior: Meet Dylan
“My name is Dylan, and I have a condition called MDP that only me and 12 other people have in the world. MDP stands for mandibular dysphasia with deafness and … READ MORE
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