Now entering its 12th year, RPV recruits patients and family caregivers for market research studies, clinical trials, and more.
Towson, MD, 1.8.2025 – First launched in 2013, Rare Patient Voice (RPV) has a history of empowering patients and family caregivers to be heard by decision makers through their participation in research. Since then, RPV has rewarded thousands of participants with a total of over $15 million (and counting) for sharing their voices.
RPV is committed to connecting clients with authentic patients and family caregivers for participation in all types of research studies. By meeting patients and their loved ones in a number of ways, including in-person patient events, a robust referral partner program, and the efforts of a dedicated Patient Advocacy team, a community of thousands is signed up to participate in research studies ranging from online surveys and focus groups to advisory boards and clinical trials.
“There’s no question that the time and insights of patients and family caregivers is valuable. At Rare Patient Voice, we are proud to pay respondents for their participation, typically at $120 per hour. Over the years, that has added up to a significant number,” said Wes Michael, President of Rare Patient Voice. “It is a great feeling to know that we have been able to help patients and family caregivers share their opinions and experiences, and also to reward them financially for their participation.”
In the dynamic landscape of healthcare research, patient recruitment remains one of the most critical and challenging aspects of success. RPV has developed a simple but powerful golden rule that underscores our commitment to precision and efficiency: recruit the right patients, at the right time, for the right research study.
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About Rare Patient Voice
Rare Patient Voice, LLC provides patients and family caregivers an opportunity to participate in all types of research including market research, health economics outcomes and real-world evidence, user experience/human factors studies, and clinical trials. The RPV community includes over 180,000 patients and family caregivers across more than 1,500 diseases, both rare and non-rare, in nine countries. Visit us at www.rarepatientvoice.com.
