“Hi everyone! Kerry AKA @buttahflyk here. I’m a happy hippie trying to do some good in the world, living with a bunch of chronic illnesses that only THINK they can stop me. That bunch includes #sarcoidosis, a few different types of #arthritis, a few different types of #neuropathy, and a handful of other conditions, just for extra fun (see all the hashtags below, and I’m sure I’ve forgotten a few ). It took 4 years for doctors to believe that anything was wrong with me, another 4 to diagnose it as sarcoidosis. Even today (6 years later), we’re still trying to figure out new symptoms, comorbidities, and treatment plans. That’s far too common among #Chronicillness patients, especially those with #RareDiseases and #InvisibleIllness. That’s why it’s so important to share our stories, so other people going through it will know that they are not alone, and to make the journey a little bit easier for the newly (or not yet) diagnosed.
If you are interested in being featured as a Weekly Warrior, please contact Stacey Haines at Stacey.Haines@rarepatientvoice.com.