Our Weekly Warrior post this week is from Frank Rivera, who gives us a firsthand snapshot of the super patient advocate he is.
Frank Rivera @frankr311
Co-Founder/President – Stronger Than Sarcoidosis
My website: https://www.strongerthansarcoidosis.org/
Founder/President- Sarcoidosis of Long Island
Advocate, Navigator and Mentor – Foundation for Sarcoidosis Research
February 2015- Accommodation for President Barack Obama
Frank Rivera is a two time published author:
An autobiography called “Walking in Silent Pain”
A continuation biography “I Have Sarcoidosis but it Doesn’t Have Me,” a book about Strength and Resilience.
December 2017 Frank was named People of the Year in the newspaper organization TBR News Media.
April 2018, Frank was interviewed by NBC Nightly News about the “Right To Try” bill.
2020- 2021- Organized 4 Online Forums.
Worked with a group of Sarcoidosis doctors, researchers and patients to have a medical journal published by NIH: