Are you a patient or family caregiver with something to say?
Make your voice heard by participating in paid surveys, interviews and online communities!
Start talking to the right people. It's free! We accept rare and non-rare diagnoses!
In celebration of our 10th Anniversary our studies now pay at a rate of $120 an hour! Sign up today!
About Our Referral Partner:
The Chronic Truth is a podcast dedicated to amplifying the voices of those living with chronic illness and rare disease. Through authentic conversations and shared experiences, we build community, break down isolation, and empower patients to advocate for themselves. We partner with Rare Patient Voice because we believe every patient's story matters—and that sharing your voice with researchers can help shape better treatments, products, and care for everyone in our community.







